brain fog?

topic posted Mon, May 19, 2008 - 4:04 PM by  Heather
I've noticed a few folks mentioning feeling confused, forgetful, that whole brain fog thing. I'm wondering just what that's like and if I might have it, too. Until recently, I was in nursing school and had a hectic schedule with lots of stress and crazy hours and so much to learn and everything. I had to keep a calendar and every nigth I would look to see what time I had to be at what place the next day, so I could be sure to set my clock and get going. It seems to be a little better since I'm out of school and not working at the present, but I wonder. i'm on that drug study and they give me these cards with the meds. It has numbered rows, so you can pop out the pills for each day. I've been writing down which day I start the pack and the day next to each row, to avoid missing a day or double-dosing. I definitely have short attention span. I can't even watch a half-hour tv show without flipping channels. I like to read, especially at night before bed and lately it seems that I'll pick up the book and not remember the last few pages and have to go back and read them again to figure out what's happening in the story.

Any ideas on this? What might cause it? What can we do about it?
posted by:
Heather
Allentown
  • Re: brain fog?

    Mon, May 19, 2008 - 4:25 PM
    ...and I see this thread and suddenly remember I've completely forgotten to take two of my Lyrica already today [sigh]...

    Cause?:

    I always figgered with all the other neurochemical chaos we all generally get mixed up in, the fibrofog is just another piece of collateral damage. (But then, I Am Not A Medical Professional...)

    What to do?:

    I make lists out the ya-ya, play online poker, do sudoku puzzles on ocassion, and continue to perfect my scheme to TAKE OVER THE WORLD!!! [cough cough]...sorry aboot that, I'll go take my meds now...
  • Re: brain fog?

    Mon, May 19, 2008 - 4:33 PM
    I have no idea. A.D.D. is all through my family, and I seem to have some version of it; for instance, as a kid, the worst kind of torture for was going to church. It seem to last forever, sitting there on that pew, waiting for the sermon to get over. I could never figure out how any of those adults could like going to church, being forced to sit still for so long. I know that a lot of kids have trouble with that but it was just hell on earth for me, and I always knew that when I'd grow up I would not be a church-goer. I did OK in school, was a quick learner, but I never admitted to having trouble with focusing on reading material. I'd have to read the same paragraphs over and over.

    When I was pregnant with my last child, 1998, I got the restless leg syndrome. It was really bad. If I had to sit still for any length of time, even watching TV, that leg would start getting the nervous shakes. I hear that can be one of the symptoms of Fibromyalgia. It was after the kid was born (August '98) that my Fibro symptoms kicked in full force. I always wondered if it was the incident with the epidural... the needle not going in right, and I jumped/ flinched, and cried. Two months later the crushing pain in my hip joints and lower back started in, which would spread down my legs. I had to sleep on an air mattress for 5 years. These days I have a good bed but I have a memory foam mattress for extra cushioning.

    Well, that was a bit of a ramble, sorry... but I'm not thinking real clearly today. Definitely, I had more brain fog with pain after the epidural incident.
  • Re: brain fog?

    Mon, May 19, 2008 - 5:02 PM
    Cause: I've read that pain eats up cognitive bandwidth. So when you're trying to read a book, you're really doing the equivalent of reading, patting your head, rubbing your tummy, walking, and chewing gum all at the same time. Makes sense. I mean, it would make it too easy if it could just take up the memory we use for annoying commercial jingles instead.

    Remedy: Like Andrew said - lists up the wazoo. We put a dry erase calendar on the back of the front door so I'd remember to look at it. Sudoku and crosswords seems to help me too, as well as creating patterns/habits (always put things in the same place, always take the same route, etc.) to limit my dependence on short-term memory.

    Fibro-fog (for me, other folks please jump in here) includes anomia, decreased working memory, and stuff my mom calls "senior moments" - like looking everywhere for your glasses only to find they're on top of your head, or sticking the remote in the fridge when you get up for a snack.

    The irony is, we end up looking like idiots sometimes when we're actually performing some incredible mental feats.
    • Re: brain fog?

      Mon, May 19, 2008 - 5:14 PM
      yea... love the fibro fog... seems to be different for everyone... different causes, durations, things that will end it...

      makes for some great jokes... if you're the kind who can laugh at yourself....
    • Re: brain fog?

      Mon, May 19, 2008 - 5:21 PM
      This all sounds so familiar. I have big issues with word find difficulty, remembering my schedule, forgetting things. I also keep tons of lists. I write down everything and keep a very detailed calendar that I check daily to make sure I'm not missing anything.

      The weird thing is that it isn't consistent. I've always been something of a brainiac when it comes to school and way above average with my grades. When I started the nursing program last year, my grades were a little less than my norm, but everyone else had the same thing, so I just figured it was the challenge of the courses. Now, I wonder what my grades would have been if I weren't dealing with the fibro pain. I was really upset when I got a B in maternal-child health, but then we lost 5 of 26 students who failed out entirely, so I tried to put it in perspective.

      I guess now the big question is if I can make some progress by January. If I don't return to school by then, my credits expiire, I've been questioning if I even want to go back and finish, but I hate the thought of just quitting.

      Ugh. This whole thing just sucks. I really hope someone can come up with some real relief soon. It's so sad that so many of us are suffering with no real solutions in sight.
      • Re: brain fog?

        Mon, May 19, 2008 - 7:15 PM
        My first term of school I bought a digital recorder with some of my tuition money... it's been the best thing ever...it was like 50 bucks.. I've seen them cheaper and more expensive...but they are fantastic... just be sure to get one that lets you flip thru different recordings easily...

        but that way I can quickly tape everythign from grocery lists to directions etc... it's great... I can also download mine to my computer... and save certain files.. the sound quality is even decent...
        • Re: brain fog?

          Mon, May 19, 2008 - 7:24 PM
          Recorder... that's a good idea!
          • Re: corder

            Mon, May 19, 2008 - 8:26 PM
            I have a little mp3 player that is also a voice activated digital recorder. Bought it to record my thoughts which get a lot deeper as I drift off to sleep. After the rebate at Office Depot, it was about $30 on sale.
            Since then, I've seen a digital voice recorder that I've been lusting over. It has 4 programs. You could use 1 for work, 1 for personal, 1 for falling asleep, and 1 for whatever. The biggest attraction was that it comes with Dragon voice recognition software that can turn the words from your voice into a word doc. It's about $200 on sale at Circuit City, or Good Guys or Best Buy kind of places.
            Mebbe someday....
            • Re: corder

              Mon, May 19, 2008 - 9:03 PM
              yea... that's the one I think I have dave.. i think it has four... *goes and digs it out*

              Okay.. I have an OLYMPUS... VN-4100PC

              it has 24 hours of record time... and you can index it how you like... it's easy to use...barely weighs anything... it's fantastic... !
      • Re: brain fog?

        Mon, May 19, 2008 - 8:58 PM
        Heather describes this brain fog and how it affected her school work.
        I was at my last job for just over 5 years. The first 4 I had good and great annual performance reviews. I took 8 weeks off last year thinking all I needed was some serious rest. 6 weeks into the leave, I'm still feeling like shit and thinking, "uh-oh, this ain't right!" I go back to work in Jan as I said I would and got ripped a new one in my review for '07.
        I was shocked and hurt b/c they (HR and my sup) knew I was having health issues! Bottom line though, is that the review shows just how much I've been affected by this shit. My neuro ordered a memory test for me. Well of course when you walk into a room and they tell you they are going to test your memory, you make an extra effort to remember what they ask of you. But when you walk out into the real world and are bombarded by stimuli of all sorts, you don't know what you're going to have to remember in 5 minutes, 5 hours, 5 weeks, or 5 years from the time the event happened.
        They said my memory was fine. I said bullshit.
        • Re: brain fog?

          Mon, May 19, 2008 - 9:06 PM
          Yea.. fibro-fog... cancer-brain... so many euphimisms... I guess it's nice we get our own name for it...

          I know on fog days... I"m just stupid and can't be trusted... I have OCD too...which is almost a good thing since it helps me police myself...you know.. don't leave the oven on or walk off with a burner lit... etc...

          There are some days that I simply will not drive because I feel I'd be a menace... I just get sooo spacy... that is without any drugs... sometimes drugs actually improve the sitch... which my partner finds delightfully ironic...

          I smoke weed and get smarter, more articulate and have better odds of kicking his ass at our boardgame sessions...

          ahhh the fog.. the evil fog... beware the fog!!!
  • Re: brain fog?

    Tue, May 20, 2008 - 4:05 AM
    It seems to be a cycle. First there is the pain , then comes the difficulty with the sleep (or is it vice versa) then comes the fog. Most of us I think would agree that our sleep is screwy that when we wake up we feel like we have been hit by a mack truck . Without good restorative sleep (ie REM sleep) our bodies don't have down time and neither do our brains so hence we have the fatigue and the fibro fog.

    It's sort of a which came first the chicken or the egg question. Who can say for sure? I personally get extremely annoyed over forgetting words or why I walked into a particular room; and I get spooked when I realize that I have essentially checked out while I am driving home ( I literally can not remember passing certain landmarks while I am on the road).
    • Re: brain fog?

      Tue, May 20, 2008 - 10:13 AM
      Yeah, driving can be scary. I try to avoid it as much as I can. Between my state of mind and my pain, it's not pleasant. Especially because I insist on driving a car with a standard transmission. I dunno why, but an automatic just feels weird to me, like you're somehow disconnected from the car and have less control. And, when my shoulder is in bad pain, it's so hard to shift. Plus, the general pain of being stuck in one position, holding my arms out to the steering wheel, etc. Even on a good day, I can go about an hour before it starts to become severely uncomfortable.

      And, yes, I've had those scary moments when I get home and realize I was driving on auto-pilot. There have been several times when I was heading home, with the intention to stop at 7-11 or the post office on the way, forgetting all about it until I find myself parked in front of my house.

      Then again, I think of all the idiots out there who are speeding, not using headlights or turn signals, tailgating, sudden lane changes, talking on the cell phone, putting on make-up, etc. I hope I'm not as bad as they are. I could go off on a whole rant about driving. Let's just say I think it's terrible that so few people show any consideration that they are driving a potentially lethal weapon with no concern about themselves or anyone around them.
      • Re: brain fog?

        Tue, May 20, 2008 - 10:27 PM
        No joke there! I bought a car that was listed in Arthritis Today's top ten cars for folks with arthritis. I figured if it was good for them it would be good for me. I almost cried when I gave up my mini-SUV for the Monte Carlo (which also happened to be the cheapest car they listed), but after driving it for a few days I was in love especially with the heated seats. I live in Texas and those suckers are on every time I drive because of my back pain. I used to cringe when I would have to drive to and especially from work, but no more. I can't imagine driving a standard anymore. I do miss the "control" you were talking about Heather, but now it doesn't bother me so much. I stopped reaching for the stick about 2 months after I switched to a vehicle with an automatic transmission.

        My favorite brain fog story goes like this. I was outta toilet paper (a total necessity!), so I drive into town thinking I'll stop by the book store and video store before I go to Walmart. I go to the book store and the video store and then I drive to Wally world. As I get into the parking lot I am thinking to myself "what the hell am I doing here?" I leave and start to head home. I get home and the first thing I have to do is use the facilities and once inside I realize "ACK! No TP", so I end up using paper towels (don't laugh I know some of you have done the same). After I do my business I write out a list of things to pick up at Wallyworld and head back out. I get there and realize i left my list at home, so I'm like O.K. I'll just go without the list. I go in shop around check out and head home. I trudge in my goods and look over at the desk and there before me is my list and in that moment I realize - you eeeeeeeiiidiiiiiioooot! you forgot TP. I gave up and went to the local convenience store and payed way too much for a single roll.
        • Re: brain fog?

          Wed, May 21, 2008 - 6:56 AM
          Oh, the forgetfulness... the well-meaning grocery list... the going around in circles while running errands... I know all about it. Just know you're not alone in that, folks.
          • Re: brain fog?

            Wed, May 21, 2008 - 7:17 AM
            I just love that moment when you're emptying your grocery cart on to the belt and realize there is one little thing that you forgot. Of course, there are usually a dozen people in line behind you, so you can't just run and get it. I did that last week. I bought potato chips and forgot the french onion dip. I try to avoid junk food, and I really don't even like the chips, but I do like the dip. So maybe once in three months or so, I'll treat myself. I was so annoyed that I just left the store and got the dip on my next trip the following week.
            • Re: brain fog?

              Wed, May 21, 2008 - 7:38 AM
              Oh yes...... the brain fog! I had never heard it descibed that way until I started reading posts from this tribe. I notice it the worst when my sleep patterns are off. I can go to bed the same time every night and get up the same time every day, but there are nights when I know I never hit my deep sleep. Those are the days I wake up feeling as if I never went to bed. Those days I find it hard to form sentences. Almost like my tongue is thick and my brain just shuts down to a dull hummmmmmmmmmmmmmmmmm.....................................................
              Unfortunately and probably not too healthy, those are the times I resort to strong coffee. The effect is temporary, but it sometimes can get me through my day of work. I write everything down every day. I have a post it notes in my pocket when I get home with scratch marks all over them. It's the only way I function. My fridge is the central "hub" of my home and everything that's written down gets posted on it. I check it several times a day to make sure I'm not forgetting something. As far as the short attention span thing goes, I find that Yoga really helps. I only do it about twice a week, but you develop such a deep focus while doing the positions. It seems like in moments when I feel my mind starting to spiral different directions and I can pull from my yoga experience and focus it back to what I'm doing at that moment.

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