Thank you for allowing me to join your tribe. It's so good to find some other folks who are dealing with these issues! I hate to admit it, but years ago, I was one of those who believed that fibro was a "made-up" word for people who wanted drugs or didn't want to work or whatever. After about eight years of undiagnosed pain, countless specialists and experiencing the doctors who just assume I am lazy or seeking drugs, I finally believe. A few doctors had mentioned FM in passing, along with thoracic outlet syndrome, Epstein-Barr and a host of other conditions. None of the treatments ever helped and no one ever gave me a definitive diagnosis. Interestingly, I also have a problem with TMJ disorder, which seems to have a high correlation with FM.
All of that changed this week. I saw an article about a new FM drug study in my town and I figured I should give it a try. I can't even explain the relief just from having a "real" doctor say, "Yes, you have fibromyalgia." I'm still in pain, but I feel better just knowing someone believes me and that there is something real and medical happening.
After losing so many jobs, getting kicked out of school when I tried for a fresh start, neglecting my family and friends and all of the other things that I guess we all share. I finally feel hope that I might find relief. The drug is called reboxetine. It's approved for depression, but not yet for FM. It's a little different because it's not an SSRI but a selective norepinephrine reuptake inhibitor. I hope it will help. I had previously tried SSRIs (the serotonin ones), but had a terrifying reaction and started having suicidal thoughts. The funny thing is that I am generally opposed to taking medications, but at this point, I just cannot see any other options.
Sorry, I guess I'm writing a whole novel here, but I just wanted to say hello and introduce myself and maybe get to know some of you as well.
All of that changed this week. I saw an article about a new FM drug study in my town and I figured I should give it a try. I can't even explain the relief just from having a "real" doctor say, "Yes, you have fibromyalgia." I'm still in pain, but I feel better just knowing someone believes me and that there is something real and medical happening.
After losing so many jobs, getting kicked out of school when I tried for a fresh start, neglecting my family and friends and all of the other things that I guess we all share. I finally feel hope that I might find relief. The drug is called reboxetine. It's approved for depression, but not yet for FM. It's a little different because it's not an SSRI but a selective norepinephrine reuptake inhibitor. I hope it will help. I had previously tried SSRIs (the serotonin ones), but had a terrifying reaction and started having suicidal thoughts. The funny thing is that I am generally opposed to taking medications, but at this point, I just cannot see any other options.
Sorry, I guess I'm writing a whole novel here, but I just wanted to say hello and introduce myself and maybe get to know some of you as well.
-
Re: new here
Wed, April 23, 2008 - 11:09 AM[waves howdy to Heather]
Hey, imagine finding you here!
(Don't sweat the novelization -- next time I get into a bottle of Bartles & James before logging on, I'll top yours easy [grins]...) -
-
Re: new here
Wed, April 23, 2008 - 12:22 PMThanks, Andrew. I guess I'm just a bit excited with the hope of some relief and people to share the experience and not think I'm crazy or a hypochondriac or drug-seeker. And, of course, I do have a long-standing tendency to ramble. :-)
Here's one more interesting discovery. You know how there are 18 tender points and if you have at least 11, they consider it to be FM. Well, I had 16 out of 18. Can you imagine? -
-
Re: new here
Wed, April 23, 2008 - 12:27 PMI can easily imagine... I have 18 of 18... tested by three different doctors over the course of ayear..... so yea.. sucks doesn't it...
I'ts all good that you wrote a novel.. no worries at all .. .we all understand here....and even if wedont alway all have the same symptoms... there are enough folks who have similar ones... that it's all good!! I promise.... you can vent here anytime you want...!
It's not suprising that you have TMJ or other disorders.. they seem to multiply... best of luck ... glad you could join us... -
-
Re: new here
Wed, April 23, 2008 - 3:19 PMFunny story.... my first family doctor to mention it told me that I probably had "a touch of fibromyalgia." I looked him right in the eye and asked if that is like being a little bit pregnant. I never went back to him.
-
-
Re: new here
Wed, April 23, 2008 - 3:24 PMHeck, my current family doctor *still* thinks I've actually got MS (despite repeatedly testing negative fer it) -- ah well, at least he refills my Lyrica without fussing...
-
-
-
#/18
Wed, April 23, 2008 - 8:45 PMAt one point I recall about 13 or 14/18. Ever since I started the gabbadabbadoobienoobieneuronotionlotion (sp?), they have been somewhat managed. The SHARP (OW!) DEEP (OWWOWWW!!!) pains have been reduced (but not eliminated), but the general, all over malaise that I describe as having the flu AND a hangover (daily) remains.
> Here's one more interesting discovery. You know how there are 18 tender points and if you have at least 11, they consider it to be FM. Well, I had 16 out of 18.
-
-
-
Re: new here
Wed, April 23, 2008 - 9:26 PMWelcome to the club! Honestly I wish that I never had to welcome anyone to our club; and interestingly enough I'd like to give up my membership but who would take it? :-P -
-
Re: new here
Wed, April 23, 2008 - 9:35 PMyea.. i've tried to give it away, mail it away...UPS...they say they can pack anything.. .they are so full of shit... guy said they didn't have the right box for FMS...
I'd try tying it to a rock and tossing it off a bridge... but i'm thinking it wouldn't work well overall.... ;-0) -
-
Re: new here
Thu, April 24, 2008 - 5:57 PM16 out of 18, myself.
And TMJ-I've been having random flare-ups with that since February. *Cringe* Just let me get through this year on my own without the intense flare up of the whole feast: RA, Fibro and TMJ. Please god.
Haven't found that making deals with deity works at all --what's up with that? -
-
Re: new here
Thu, April 24, 2008 - 9:44 PMyea... I've tried offering tithing for pain relief.. you know.. "goddess, give me a pain free day today and I'll bag someone elses groceries, or donate time at the USO (which i'm determined to do anyway)"... hasn't happened yet... but I keep trying...! -
-
Re: new here
Thu, April 24, 2008 - 9:46 PMI've just had to learn to accept the fact, that I am Coyote's Chew toy ... and he has very sharp teeth. -
-
Re: new here
Thu, April 24, 2008 - 9:49 PM*maked the "TESTIFY" arm motions* got that right dearheat....
-
-
-
-
-