Consider Lyme Disease...

topic posted Sun, April 20, 2008 - 1:20 PM by  sparkle7
Check out this article - www.essense-of-life.com/info/t...ase.htm

You may have Lyme Disease. I did...

(excerpt)

"There are very few symptoms where you shouldn't consider Lyme," says Dr. Cowden. "more than 50% of chronically ill people may have Lyme contributing to their condition." The situation is quite difficult now. "It's sad where we are with this disease," says Dr. Cowden. "You're supposed to go through the 'standard' treatment first before turning to alternative treatments. We need to turn this around, into a logical, integrated approach." The impetus for this change must come not only from the patients who have been classically infected by a tick bite, but by those who suffer from "unexplained" muscle and joint pain, unrelieved fatigue and cognitive impairment – and by those who are afflicted with degenerative diseases that can be caused or aggravated by Lyme. Presently, such patients will find few doctors experienced in Lyme, because of the newness of the disease and lack of understanding about it – and because those doctors who take a comprehensive approach to diagnosing and treating Lyme are commonly harassed by state medical boards, insurance companies and HMOs.

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Beware - all of the tests for Lyme are not accurate. So, even if you were tested, you may still have Lyme...
posted by:
sparkle7
New Jersey
  • Re: Consider Lyme Disease...

    Sun, April 20, 2008 - 1:39 PM
    www.canlyme.com/patsymptoms.html

    Lyme Disease ( commonly misspelled as Lime or Lymes) symptoms may show up fast, with a bang, or very slowly and innocuously. There may be initial flu-like symptoms with fever, headache, nausea, jaw pain, light sensitivity, red eyes, muscle ache and stiff neck. Many write this off as a flu and because the nymph stage of the tick is so tiny many do not recall a tick bite.

    Lyme Disease, SYMPTOMS & CHARACTERISTICS, a compilation of peer-reviewed literature reports

    The classic rash may only occur or have been seen in as few as 30% of cases (many rashes in body hair and indiscreet areas go undetected). Treatment in this early stage is critical.

    If left untreated or treated insufficiently symptoms may creep into ones life over weeks, months or even years. They wax and wane and may even go into remission only to come out at a later date...even years later.

    With symptoms present, a negative lab result means very little as they are very unreliable. Read here. The diagnosis, with today's limitations in the lab, must be clinical.

    Many Lyme patients were firstly diagnosed with other illnesses such as Juvenile Arthritis, Rheumatoid Arthritis, Reactive Arthritis, Infectious Arthritis, Osteoarthritis, Fibromyalgia, Raynaud's Syndrome, Chronic Fatigue Syndrome, Interstitial Cystis, Gastroesophageal Reflux Disease, Fifth Disease, Multiple Sclerosis, scleroderma, lupus, early ALS, early Alzheimers Disease, crohn's disease, ménières syndrome, reynaud's syndrome, sjogren's syndrome, irritable bowel syndrome, colitis, prostatitis, psychiatric disorders (bipolar, depression, etc.), encephalitis, sleep disorders, thyroid disease and various other illnesses. see Other Diseases and Lyme...Relationship

    If you have received one of these diagnoses please scroll down and see if you recognize a broader range of symptoms.

    If you are a doctor please re-examine these diagnoses, incorporating Lyme in the differential diagnoses.

    The one common thread with Lyme Disease is the number of systems affected (brain, central nervous system, autonomic nervous system, cardiovascular, digestive, respiratory, musco-skeletal, etc.) and sometimes the hourly/daily/weekly/monthly changing of symptoms.

    No one will have all symptoms but if many are present serious consideration must be given by any physician to Lyme as the possible culprit. Lyme is endemic in Canada period. The infection rate with Lyme in the tick population is exploding in North America and as the earth's temperature warms this trend is expected to continue.

    Symptoms may come and go in varying degrees with fluctuation from one symptom to another. There may be a period of what feels like remission only to be followed by another onset of symptoms.

    PRINT AND CIRCLE ALL YES ANSWERS ( 20 yes represents a serious potential and Lyme should be included in diagnostic workup )

    Symptoms of Lyme Disease

    The Tick Bite (fewer than 50% recall a tick bite or get/see the rash)
    Rash at site of bite
    Rashes on other parts of your body
    Rash basically circular and spreading out (or generalized)
    Raised rash, disappearing and recurring


    Head, Face, Neck

    Unexplained hair loss
    Headache, mild or severe, Seizures
    Pressure in Head, White Matter Lesions in Head (MRI)
    Twitching of facial or other muscles
    Facial paralysis (Bell's Palsy)
    Tingling of nose, (tip of) tongue, cheek or facial flushing
    Stiff or painful neck
    Jaw pain or stiffness
    Dental problems (unexplained)
    Sore throat, clearing throat a lot, phlegm ( flem ), hoarseness, runny nose


    Eyes/Vision

    Double or blurry vision
    Increased floating spots
    Pain in eyes, or swelling around eyes
    Oversensitivity to light
    Flashing lights/Peripheral waves/phantom images in corner of eyes


    Ears/Hearing

    Decreased hearing in one or both ears, plugged ears
    Buzzing in ears
    Pain in ears, oversensitivity to sounds
    Ringing in one or both ears


    Digestive and Excretory Systems

    Diarrhea
    Constipation
    Irritable bladder (trouble starting, stopping) or Interstitial cystitis
    Upset stomach (nausea or pain) or GERD (gastroesophageal reflux disease)


    Musculoskeletal System

    Bone pain, joint pain or swelling, carpal tunnel syndrome
    Stiffness of joints, back, neck, tennis elbow
    Muscle pain or cramps, (Fibromyalgia)


    Respiratory and Circulatory Systems

    Shortness of breath, can't get full/satisfying breath, cough
    Chest pain or rib soreness
    Night sweats or unexplained chills
    Heart palpitations or extra beats
    Endocarditis, Heart blockage


    Neurologic System

    Tremors or unexplained shaking
    Burning or stabbing sensations in the body
    Fatigue, Chronic Fatigue Syndrome, Weakness, peripheral neuropathy or partial paralysis
    Pressure in the head
    Numbness in body, tingling, pinpricks
    Poor balance, dizziness, difficulty walking
    Increased motion sickness
    Lightheadedness, wooziness


    Psychological well-being

    Mood swings, irritability, bi-polar disorder
    Unusual depression
    Disorientation (getting or feeling lost)
    Feeling as if you are losing your mind
    Over-emotional reactions, crying easily
    Too much sleep, or insomnia
    Difficulty falling or staying asleep
    Narcolepsy, sleep apnea
    Panic attacks, anxiety


    Mental Capability

    Memory loss (short or long term)
    Confusion, difficulty in thinking
    Difficulty with concentration or reading
    Going to the wrong place
    Speech difficulty (slurred or slow)
    Stammering speech
    Forgetting how to perform simple tasks


    Reproduction and Sexuality

    Loss of sex drive
    Sexual dysfunction
    Unexplained menstral pain, irregularity
    Unexplained breast pain, discharge
    Testicular or pelvic pain


    General Well-being

    Unexplained weight gain, loss
    Extreme fatigue
    Swollen glands/lymph nodes
    Unexplained fevers (high or low grade)
    Continual infections (sinus, kidney, eye, etc.)
    Symptoms seem to change, come and go
    Pain migrates (moves) to different body parts
    Early on, experienced a "flu-like" illness, after which you have not since felt well.
    Low body temperature
    Allergies/Chemical sensitivities
    Increased effect from alcohol and possible worse hangover
    • Re: Consider Lyme Disease...

      Mon, April 21, 2008 - 2:38 PM
      yikes.. I got a 43... hmmm....
      • Re: Consider Lyme Disease...

        Wed, April 23, 2008 - 9:46 AM
        i got 38 of course theres also a new theory that lyme is a leading cause in FMS and while they can tone down or kill off lyme which can make a huge dent you'll still have the fms. They also said 90% of all fms cases are misdiagnosed lyme cases. so i dont know ......
        • Re: Consider Lyme Disease...

          Sun, April 27, 2008 - 6:16 PM
          How can you know you have Lyme (to "kill it off") if you are diagnosed with FMS or CFS? This is what happened to me.

          If you don't get a proper diagnosis & think you have some other illness, it can become very difficult to get rid of it. If you catch it right away (re: Lyme) at least you can have a chance of proper treatment & will hopefully be able to get well.

          You really got to look into this if you think you may have Lyme. The trouble is, is that the tests are inaccurate. Lyme is mostly diagnosed by clinical diagnoses (ie: by process of elimination with no test) by a doctor who is familiar with Lyme. Especially, in cases where people have been ill for a while.

          Hi Anni! Missed ya!
          • Re: Consider Lyme Disease...

            Mon, April 28, 2008 - 9:45 AM
            They had been talking about how sometimes when say doxycycline doesn't work for one person, it will work for another, while others might need the arythromyacine (sp?). Some need combinations, some need it switched on off/back and forth over months-years etc...Now sometimes they are finding the problem is that with these heavy duty antibiotics, the bacteria or virus whatever bonds with it and then becomes even more resistant the longer its in your system. My friends dad just went to a lyme specialist and he was relaying the basic things to me, i know theres more i just dont know where that part of my brain just went....crap...
  • Re: Consider Lyme Disease...

    Sun, April 27, 2008 - 11:28 PM
    i got a 66. what do i win??
    • Re: Consider Lyme Disease...

      Mon, April 28, 2008 - 9:50 AM
      *hands you a floating lead rope and gestures at her side* You get an invisible,magical pony! ta-da!
      j/k :oP
      no but seriously you should look into a specialist chicky, the meds are on wal-marts and wal greens 4 dollar plan thingys which helps if your tight on cash.
    • Re: Consider Lyme Disease...

      Mon, April 28, 2008 - 9:53 AM
      I dunno, but yah edged me out -- I got a 59 (plus or minus a couple...)
      • Re: Consider Lyme Disease...

        Mon, April 28, 2008 - 2:09 PM
        ::giggling::
        wouldn't it be the LOW score that wins here?

        ding ding ding ding.. meagan's 38 wins low score so far...

        hmm... fibro and Lyme are related?
        ... that sucks...
        or... at least its more food for thought...
        [note to self: discuss this with doc..]
        • Re: Consider Lyme Disease...

          Tue, April 29, 2008 - 6:56 PM
          I've been tested for this before; no luck.

          It's good that you let folks know.
          • Re: Consider Lyme Disease...

            Wed, April 30, 2008 - 11:54 PM
            The tests are no good, folks! None of 'em! You have to get a clinical diagnosis - otherwise, you will never know. It has to be from a doctor who is familiar with Lyme (called LLMDs - Lyme Literate MDs). Lyme bacteria can evade the immune system & they change form when they are threatened by drugs like antibiotics or herbal treatments. I've heard they are 400 times harder to kill than syphilis which is a similar bacteria.

            From my studies - it seems that Lyme may be easier to kill with antibiotics if you catch it early - like within 24 hours or so. It is very difficult to treat & many people take hardcore antibiotics for many years. I, personally, do not agree with this method but some people have good results. Many have very bad side effects from the long term use of abx. I have decided to use an herbal protocol.

            Many people also has what is known as "co-infections". The ticks carry other parasites & bacteria that are often just as bad if not worse than Lyme. You also have to treat these, too.

            I know this really sucks but it's important. Many people have Lyme that do not know it. Many people do not get the bulls-eye rash & have no idea they have been bitten by a tick. Lyme has been found in every state of the US & in most of the world. It is very dangerous but the media is not warning people!

            Do not rule this illness out if you have Fibromyalgia or CFS. The ticks can be as small as the period of a sentence when they are in nymph form & can cause Lyme at this stage.

            There's alot of info on the internet about Lyme. If you think you may have it you have to spend alot of time researching it. Sorry to say but that's the only way. Many doctors are completely ignorant about Lyme.

            I was tested twice & both of my tests were considered negative by NY State standards! The tests do not mean anything unless you see a doctor who is familiar with Lyme. I'm not trying to put anyone on the spot or promote fear but this is the reality of the situation.

            I hope you all get well!

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