Vitiligo

topic posted Fri, September 1, 2006 - 1:27 PM by  Mearah
Anyone out there with vitiligo? I am a lupus-sjogrens-ra with a fine case of vitiligo. I am getting used to the stares and people pulling away, but still looking for someone to bitch with!! The vitiligo started last year and now I am a beautiful study in white and brown skin. It's like the energizer bunny - it keeps going and spreading.....
posted by:
Mearah
Boise
  • Re: Vitiligo

    Sat, November 25, 2006 - 9:04 PM
    Hi, I joined the tribe to say... me too. I have had vitiligo for at least 7 years. i am not exactly sure because it started in an area one must use a mirror to see. Tee Hee. it sucks, but I have gotten used to it. Fortunately most people I have met either haven't noticed or know it is not contagious. Although this past summer i got it on my neck and with the sun turning the rest of my skin a healthy brown, I noticed more people staring. Next summer I am going to stay covered as much as possible. Although one of the places I have it the worst is my hands. Hard to cover them up. It sucks, but I always try to think of things that could be worse.

    Best.
  • Re: Vitiligo

    Tue, July 31, 2007 - 6:10 PM
    Hi, I'm a 34 yr old bln/blu female with low cortisol/pre-addison's and very high ACTH. I suddenly got vitiligo on my face in spots where I'd previously had acne 4 yrs ago, and it's since spread to other areas of my face. I started taking cortisol supplements 3 months ago but have yet to notice a difference. For those of you with vitiligo, do you have a hormonal-type diagnosis? My Dr says the spots will go away but it takes a year (I don't know if she meant a year before they start fading or what?) I wish I knew if meds I'm taking are helping or hurting!! I know some meds can aggravate vitiligo, but I'm not sure what they are (I'm on Wellbutrin and Concerta and Subutex). Any imput would be great!!

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