Tribe.net. Local Connections Mearah http://tribes.tribe.net/autoimmuneavatarworldcyberdive/thread/c19254a7-817d-4c53-93c3-c4af7384c4b2 2007-08-01T01:10:05Z 2006-09-01T20:27:53Z

<div>Anyone out there with vitiligo? I am a lupus-sjogrens-ra with a fine case of vitiligo. I am getting used to the stares and people pulling away, but still looking for someone to bitch with!! The vitiligo started last year and now I am a beautiful study in white and brown skin. It's like the energizer bunny - it keeps going and spreading.....</div> <div> posted in <a href="http://tribes.tribe.net/autoimmuneavatarworldcyberdive">Autoimmune, AvatarWorld CyberDive</a> - 2 replies </div>

Mearah 2006-09-01T20:27:53Z SammyJo http://tribes.tribe.net/autoimmuneavatarworldcyberdive/thread/2d58d77b-577f-4c4c-8a18-9cee3f36d3bd 2007-07-22T05:40:47Z 2007-07-22T05:40:47Z

<div>Low Dose Naltrexone, 4.5mg, harmless. As cheap as vitamin C! Big Pharma's worst nightmare. Just need an open minded doc to prescirbe. Got my ass out of an MS wheelchair 3 yrs ago. Now I don't spend $1500/mo on designer drugs. So I raised $25k to help fund a study at UCSF, and more studies are starting for all the conditions it can benefit. This is going to be as big as penicillian. <br/>LDN &amp; MS - http://LDNers.org <br/>LDN for everything else - http://LDNinfo.org <br/>Help me spread the word, save somebody from suffering another day! <br/>SammyJo</div> <div> posted in <a href="http://tribes.tribe.net/autoimmuneavatarworldcyberdive">Autoimmune, AvatarWorld CyberDive</a> - 0 replies </div>

SammyJo 2007-07-22T05:40:47Z vbm http://tribes.tribe.net/autoimmuneavatarworldcyberdive/thread/f1fe019d-fd28-4c97-b542-1c5bd01187a9 2006-11-26T05:07:21Z 2006-04-09T05:06:48Z

<div>I have alopecia due to some incredibly stressful situations. My beautiful locks are falling out by the handful at times. I'm trying to find some supplements, such as amino and fatty acids, etc. in order to reverse the auto immune condition caused by stress, before I get really sick with something else. <br/> <br/>I'm currently taking multi-vitamins and some mineral supplements, but I do believe i need additional supplements that I'm lacking in my body due to the stress. <br/> <br/>Thanks for your help! <br/> <br/>Blessings and peace</div> <div> posted in <a href="http://tribes.tribe.net/autoimmuneavatarworldcyberdive">Autoimmune, AvatarWorld CyberDive</a> - 2 replies </div>

vbm 2006-04-09T05:06:48Z isabeau http://tribes.tribe.net/autoimmuneavatarworldcyberdive/thread/058860ae-8223-45f5-811a-17fb1aafa177 2006-10-13T05:27:52Z 2005-10-27T01:26:38Z

<div>hi all -- <br/> <br/>i have a health history that points to a possibility of hashimoto's. <br/> <br/>as an acupuncturist and TCM practitioner, i'm managing it primarily from a TCM perspective, as i don't want to use any kind of synthetic thyroid hormones (or have my thyroid 'nuked'). <br/> <br/>if there's any other natural remedies or nutritional remedies anyone on the thread finds helpful for keeping hashimoto's down to a tiny whimper, i'd be happy to read them. <br/> <br/>also, my dad had an erroneous diagnosis of scleroderma (the blood tests don't match scleroderma, though symptoms do; and i know this can happen with autoimmune diseases, a lot of them don't fit the 'profile'). if anyone fits this profile, i'd be interested to know what you're doing to cope with the symptoms. <br/> <br/>thanks!</div> <div> posted in <a href="http://tribes.tribe.net/autoimmuneavatarworldcyberdive">Autoimmune, AvatarWorld CyberDive</a> - 1 reply </div>

isabeau 2005-10-27T01:26:38Z http://tribes.tribe.net/autoimmuneavatarworldcyberdive/thread/6d1427f0-d4de-47ab-a184-f669014fb1f2 2006-09-01T20:13:39Z 2006-08-08T09:55:17Z

<div>I am up late tonight, with unbelievable pain. A week ago I had my purse stolen from me, and along with it two of my main medications that I use to control the symptoms of my M.S. The two medications were: Clonapin (for muscle spasms in my legs, and insomnia) and long acting Oxycontin. I use to take 8 regular percocets a day, and then other meds to help me not vomit up the percocet. <br/> <br/>I decided to take the long acting percocet as a means to lower the over all amount of pain meds I was taking, and to have longer, more effective coverage for my pain. I didn’t want to be on allot of meds, and as a result me and my primary Doctor, discussed my options and came up with the Clonapin/oxycontin combo were the best for me, and I signed a pain management contract. One of the terms was that I would not refill my meds before they were due, so as to monitor the amount I was taking, and to rule out any illegal actions with my drugs (like selling them, or abusing them.) <br/> <br/>After loosing my purse to thefts, I called my doctors, and explained the situation. I was also in the middle of a severe flare up due to the increased heat in our area. My doctors told me that “rules were Rules” and I would receive no refill and no pain management of any kind from their office, and if it got bad enough, I would have to go to the E.R. <br/> <br/>As A nurse I understand the pain contract, and I understand rules. So I decided to tough it out, and bide my time till my refill (hopefully in four more days.) What I couldn’t understand, either as a nurse, or as a patient…was what my neurologist said to my primary care doctor, who then passed the message on to me. <br/> <br/>“As a neurologist, I must tell you that I find your medical practice as a PCP towards my patient (me) to be inappropriate in dealing with her pain issues. It is my findings and opinion as a neurologist that M.S does NOT have pain as one of its symptoms, and thus treating my patient (me) with long term pain meds, is inappropriate and leaves her at a risk for addiction and abuse. <br/> <br/>I was stunned! M.S is painless? PAINLESS? So all those nerve pain issues I have are what…fake? All the muscle rigidity, and spasms are what….pain free? <br/> <br/>My neurologist in the one year that he has been my Doctor, has never prescribed a single prescription for me, sighting in private notes (that my blessed PCP latter let me see) that in His (my neuro’s) opinion that I am a drug addict, based solely on my inability to get control of my pain without narcotic pain meds from time to time…he also noted that my large amounts of tattoos and piercings were further evidence that I was living a lifestyle congruent with drug abuse? <br/> <br/>WTF? I was a drug counselor for five years, at a youth lock down facility….I am a nurse…I am a not a drug addict. I have been evaluated (on my request) for drug or alcohol abuse, and have been found to not be an addict. I don’t even drink! <br/> <br/>I am so lost with my health right now…..I can not change doctors or health plans until the first of next year, and must rely on poor Neurologist for my neuro needs, and a sweet PCP who continues to help me research my options, and gives me pain management drugs under a different diagnosis, in order to keep giving them to me. <br/> <br/>So MS is painless huh? <br/> <br/>I’m just curious; as I know no one else close to me who also has MS…..Does anyone else site pain as one of their complaints? <br/> <br/>How does one fight against a doctor who thinks that you are not only an addict based on your appearance, and also believes that MS is a pain free disease? <br/> <br/>Sorry to ramble on and regurgitate all my frustration here….but I am in extreme pain, with leg cramps that won’t quit and neuralgia in my arms and face. I refuse to go to the ER, as the last time I did when I went blind in one eye, and had passed out from pain during a heat wave in our area…the ER called my lovely Neurologist and he told them that I was not to be treated, as I was an addict. I had to go see my PCP the next morning, after having not slept, to get steroids to help with the temporary blindness. <br/> <br/>Am I way off here….or is this not appropriate care from my Neuro? And not my PCP? <br/> <br/>Totally confused and feeling left hung out to dry. <br/> <br/>I welcome all comments on this….. <br/>Kat</div> <div> posted in <a href="http://tribes.tribe.net/autoimmuneavatarworldcyberdive">Autoimmune, AvatarWorld CyberDive</a> - 2 replies </div>

2006-08-08T09:55:17Z ZeiRuin http://tribes.tribe.net/autoimmuneavatarworldcyberdive/thread/b572872f-ad18-44df-9f0a-5d9c054cda23 2005-07-20T19:10:33Z 2005-07-20T19:09:10Z

<div> <br/>= <br/> <br/>to Join Our 'Autoimmune, AvatarWorld CyberDive' ... Family! <br/> <br/>"Hello Lori &amp; Melita, Thank You for Joining Us!" <br/> <br/>{{{ Everyone }}}. <br/> <br/>Please Feel Free to ... <br/> <br/>~ post anything you like; ... regarding Autoimmune, <br/>DisAbility &amp; Related (topics, issues, questions, <br/>comments, ideas, suggestions, requests, Etc.) <br/> <br/>~ invite whomever you wish to join, &amp; become a <br/>member with us here at Autoimmune, AvatarWorld <br/>CyberDive! ... The more the merrier; ... (&amp; so we can <br/>have our AvatarWorld Party)! ;-D <br/> <br/>~ list special upcoming Autoimmune, DisAbility, &amp; <br/>Related upcoming events; ... both 'Online' &amp; 'Offline'! <br/>[Eg. fund raiser, awareness day, parties, shows (tv, <br/>radio, movie, theatre), etc.] <br/> <br/>~ have a favorite Autoimmune, DisAbility, &amp; Related <br/>Story (book, movie, tv, radio, movie, theatre, show, <br/>song, &amp;/or character), etc.? ... Post it here, we'll check <br/>it out; ... if we can! <br/> <br/>~ have a personal (story, event, etc.), you wish to <br/>share? ... Your welcome to do so here; ... we'd love <br/>to hear! <br/> <br/>~ have a favorite (picture, poem, story); you (found, <br/>were given, or made yourself? ... share it with us! <br/> <br/>~ request prayers (illness, disAbility, well wishes); <br/>celebratory (congratulations, birthdays, births, <br/>anniversaries); ... &amp; notations (bereavement <br/>&amp; memorials), etc.! <br/> <br/>~ Set up a day &amp; time with ZeiRuin, to take a <br/>spin in our AvatarWorld CyberDive chatworld; <br/>we'll be holding all our Autoimmune Meetings <br/>here! ... (It'll be a chance for you to try it, <br/>become familiarized, &amp; get yourself all geared <br/>up &amp; together; before attending the next meeting <br/>&amp;/or event here!) <br/> <br/>That's all for now! ... Thank you, have a great day; <br/>... &amp; enjoy your stay! <br/> <br/>Sincerely, <br/> <br/>*Zei~ <br/>;-D <br/> <br/>= <br/> <br/>.</div> <div> posted in <a href="http://tribes.tribe.net/autoimmuneavatarworldcyberdive">Autoimmune, AvatarWorld CyberDive</a> - 0 replies </div>

ZeiRuin 2005-07-20T19:09:10Z ZeiRuin http://tribes.tribe.net/autoimmuneavatarworldcyberdive/thread/1320f799-764e-4d68-bcd5-6111ca5fe427 2005-07-15T09:44:33Z 2005-07-15T09:43:44Z

<div>= <br/> <br/>{{{ Everyone }}} <br/> <br/>Got a funny &amp;/or ROTFLMAO - Autoimmune, DisAbility <br/>&amp;/or Related (stories, jokes, one-liners, etc.); you just <br/>got to tell!!? ... Begin your wittiness tales of laughter, <br/>smiles, chuckles, grins, etc.; because your beside <br/>yourself its such a scream, &amp; must share right here ... <br/> <br/>*Zei~ <br/>;-D <br/> <br/>= <br/></div> <div> posted in <a href="http://tribes.tribe.net/autoimmuneavatarworldcyberdive">Autoimmune, AvatarWorld CyberDive</a> - 0 replies </div>

ZeiRuin 2005-07-15T09:43:44Z ZeiRuin http://tribes.tribe.net/autoimmuneavatarworldcyberdive/thread/efa7eca5-5d14-46a4-bcf0-c2b2a7560be9 2005-07-15T08:09:55Z 2005-07-15T07:14:38Z

<div>of our Autoimmune, AvatarWorld CyberDive! <br/> <br/>"Hello Sonya, Thank You for Joining Us!" <br/> <br/>{{{ Everyone }}}, <br/> <br/>Please Feel Free to ... <br/> <br/>~ post anything you like; ... regarding Autoimmune, <br/>DisAbility &amp; Related (topics, issues, questions, <br/>comments, ideas, suggestions, requests, Etc.) <br/> <br/>~ invite whomever you wish to join, &amp; become a <br/>member with us here at Autoimmune, AvatarWorld <br/>CyberDive! ... The more the merrier; ... (&amp; so we can <br/>have our AvatarWorld Party)! ;-D <br/> <br/>~ list special upcoming Autoimmune, DisAbility, &amp; <br/>Related upcoming events; ... both 'Online' &amp; 'Offline'! <br/>[Eg. fund raiser, awareness day, parties, shows (tv, <br/>radio, movie, theatre), etc.] <br/> <br/>~ have a favorite Autoimmune, DisAbility, &amp; Related <br/>Story (book, movie, tv, radio, movie, theatre, show, <br/>song, &amp;/or character), etc.? ... Post it here, we'll check <br/>it out; ... if we can! <br/> <br/>~ have a personal (story, event, etc.), you wish to <br/>share? ... Your welcome to do so here; ... we'd love <br/>to hear! <br/> <br/>~ have a favorite (picture, poem, story); you (found, <br/>were given, or made yourself? ... share it with us! <br/> <br/>~ request prayers (illness, disAbility, well wishes); <br/>celebratory (congratulations, birthdays, births, <br/>anniversaries); ... &amp; notations (bereavement <br/>&amp; memorials), etc.! <br/> <br/>That's all for now! ... Thank you, have a great day; <br/>... &amp; enjoy your stay! <br/> <br/>Sincerely, <br/> <br/>*Zei~ <br/>;-D <br/></div> <div> posted in <a href="http://tribes.tribe.net/autoimmuneavatarworldcyberdive">Autoimmune, AvatarWorld CyberDive</a> - 0 replies </div>

ZeiRuin 2005-07-15T07:14:38Z