My story

topic posted Mon, February 4, 2008 - 10:47 AM by  Saar-rah
I got a huge smile on my face when I stumbled across this tribe. What a great idea! Sometimes I feel like I am the only one - now I know I'm not!

I have bilateral congenital hip dislocation. It wasn't diagnosed until it was too late to correct with braces. I have gone through many surgeries on my hips including one that further damaged my left hip. Pain management has been a part of my entire life. I can't sit criss-cross-applesauce. I have foot long scars down my hips with football-like hashes. I have always had a limp. My hips, and thus back, are crooked which is visible and causes all my hems to hang longer on my left side. I was always the kid who couldn't be in physical education or was picked dead last for whatever team was forming.

My husband gave me 4 belly dancing lessons for a Christmas gift in 2004. I was mortified. I went with dread in my heart thinking I would have to endure 4 lessons with young, blonde, 19 year old girls who had taken dancing lessons all their life. How wrong I was! The room was full of regular women and girls who all had different bodies and different experiences. I'll be forever grateful to my husband for introducing me to an activity that is so fun, such good exercise, and has introduced me to lots of other regular women who enjoy it too.

My advice in every day life for someone with a disability is pretty simplistic:

Do everything you can to naturally reduce your pain level. Pain wears us too thin.

If you know of an exercise that targets your problem do it religiously. Exercise really can reduce pain and strengthen your weak area.

Be kind to your body with good nutrition. Cut out all the junk you can - processed foods, white flour, white noodles, white rice, sodas, and white sugar.

And when things seem to much to bear I use comparison for a reality check. I can still see, hear, smell, taste, and feel. My brain works. I have food each day and shelter every night. (There are so many in this world who don't even have their most simple daily needs met.) I have a healthy and intelligent daughter who is full of goodness and a husband who tells me that he likes my scars because they are an outward sign of how strong I am.

Keep dancing!
Saar-rah




posted by:
Saar-rah
Dallas
  • Re: My story

    Mon, February 4, 2008 - 2:40 PM
    Oh, Saar-rah, I don't even know you and I wanted to give you a big ol' hug. I really needed to read this today.

    BTW, I have some pretty large scars (not due to any health problem other than poor judgement and mountain biking), and I've learned to be super-proud of how tough they look, instead of fretting about not having pretty legs. Your husband is absoutly right!
    • Re: My story

      Wed, February 6, 2008 - 3:01 AM
      Thank you so much for sharing your story!

      I was happy to discover this tribe as well. Due to a serious car wreck a few years ago, I now live with constant pain in my right hip--seat belt bucklel (no complaints--it saved my life). I had lots of injuries and siting upright for longer than 30 minutes was difficult. However, over time I healed. I was so fortunate to have taken ATS belly dance lessons a year before and with my doctors approval used the strong moves as part my recovery.

      My hip damage was "missed" in the emergency room due to all the more obvious injuries. I've been told that chances are it was a mild fracture that needed support and only got worse over time--attempting to heal and refracturing with my normal activities. I can believe that since over the years since the accident, I would have had cycles of pain that no one seemed to be able to explain (nor did anyone think to x-ray/MRI the hip until about four years ago!!!). I am now under the care of a bone specialist who allowed me to use belly dance moves instead of PT. (He made sure that the moves covered all the ranges of motion he was interested in before approving it).

      I have been dancing for 12 years and teaching off and on for six years, consistently for four. I, too, try to keep the pain in perspective (though sometimes when I can barely walk it is hard). And like you, I feel blessed.

      Thanks again for sharing your story.

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