Calling all bellydancers - MS research help needed!

topic posted Mon, December 8, 2008 - 9:23 AM by  wildcat
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I am beginning my doctoral case report for my physical therapy program. A friend of my family used to bellydance professionally before she discovered she had multiple sclerosis. Twenty years later, she is pretty severely affected and stuck in a wheelchair, and has asked me to teach her wheelchair bellydance. I can do my case report on anything I want to, so I am researching the effects of bellydance on treating multiple sclerosis.

Common issues afflicting people with MS includes decreases in posture, static and dynamic balance, trunk stability, aerobic capacity, muscle strength/control, flexibility and breathing capacity, and increases in fatigue level and depression. I have broken down aspects of bellydance and feel that when routines are properly put together they can coincide with these issues exactly. The question I will research is how much does bellydance actually help these issues in MS? Another aspect I am studying is if the addition of bellydance (rhythmic combinations of all the above set to music) can promote compliance to activity (home exercise program) and improve depression. I plan on measuring all these aspects scientifically.

Last summer I treated an MS patient with trunk balance, posture, strength, and fatigue issues with a pelvic and trunk program on a stability ball and thought it looked a lot like bellydance. The patient improved greatly, and does the exercises herself at home every day, and enjoys doing them. This really gave me the idea, and I look forward to being able to document any impact an actual bellydance routine might have on an old pro who wants to feel like a dancer again.

If anyone has any information on research for any type of dance, training (yoga, pilates, etc) or any ideas on the components I have listed above that may be influenced by dance or that may pertain to therapeutic benefit of any kind, let me know. If you know of anyone with MS who can provide perspective, let me know. I have an entire year to finish this case report
posted by:
wildcat
Ohio
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  • Hi there,

    How has your research been going?

    I’ve been working with the director of my local independent learning centre to present a proposal for an adaptive belly dance class for people with disabilities.

    We will be meeting with a provencial official from the Department of Recreation and Sport to discuss funding for this course on February 18th.

    Do you have any suggestions, advice or critique for us?
    • I am working on my introduction and methods now. There is no research on belly dance, and little on dance and MS, but I've found tons on dance and problems common in MS (fatigue, depression relief, strength/coordination), as well as exercise in general for MS.

      I am performing the actual intervention this summer. I plan on focusing on core stability as an outcome, measured by functional reaching both forward and sideways which can help improve balance, independence, and safety. It has also been suggested to me to measure core strength through a KinCom machine we have in my department, which measures maximal force production, and can measure if any improvements have been gained in musculature. I also want to use a subjective physical and psychological disability questionnaire used specifically for MS (The MSIS 29 if anyone is familiar with it), which will let me know how the patient perceives their total well being both before and after the treatment. Since fatigue is such a huge issue in MS, I will document the amount and duration of rest breaks needed per session, with the hopes that they will be less frequent each time. I am also planning on seeing if belly dance will make a patient want to exercise more on their own, so I will spent the first half of the summer dancing with them, and the second half trying to get them to do it on their own. They will be measured for reaching each week of the summer, strength two or three times, and take the MSIS at the beginning and end of treatment.

      I found a British neurophysiotherapist and MS specialist who taught belly dance to her neuro patients, and felt it had a good place in therapy, but it was just a blurb on the internet and not from an actual medical journal. It was three years old as well, and I have not been successful in getting a hold of her. But I did include it in my research as it shows that others in my profession have put it in their arsenal.

      If anyone has any information on MS, dance, or therapy in general, let me know. I could always use more.
      • I am submitting my proposal for my case report tomorrow. I have changed my format somewhat. I am going to assess trunk stability and attempt to improve it through belly dance, which I believe can be done barring any unforseen events such as exacerbations and such. I am also attempting to see if belly dance can promote adherence to a home exercise program, and any of us who love dance know how infectious it can be. I hope it goes well, and i will be sire to let you all know how it's going.
        • Hey - it's been a while since I last posted anything on my research, so I thought I'd give everyone an update.

          I finished my research and dancing with my subject - a 57 year old woman with secondary progressive MS, who uses a wheelchair due to increasing mobility issues. She could only stand for short periods of time, so I taught her seated belly dance with some standing when she felt capable. I danced with her one on one three days per week for three weeks, which was the most fun I've ever had doing research. I created an instructional videotape for her of one hour of seated belly dance moves, one song of standing moves to be used with a walker or other support, and two songs worth of seated choreography. She was instructed to use it three days a week for three weeks. We even used veils to increase endurance and object balancing to increase muscle control. The experiment went very well. She improved her trunk stability in a scientifically measurable and clinically significant manner. She has been using the video for six weeks so far, and shows no signs of stopping. Her depression scores reduced, as did her feelings of limitation due to MS. Her fatigue levels also reduced, and she was able to do more for longer, which is still improving. In addition, she reported more ease in dressing, bed activities, transferring from surface to surface, and feels more balance and more control of her body, which is important as she is a reasonably high fall risk person. She appreciated the idea of using what she had rather than omitting what she did not have, as well as looking and feeling beautiful while doing it.

          I am in the middle of writing my final paper and presenting the information for later this semester. I will also be creating future research projects based on my report, including other populations that belly dance could work for and how to get people to give me money for my work. I am looking forward to presenting my information so the physical therapy community can understand the benefits of using belly dance as therapy either in whole or through use of the separate moves as exercises.

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