excietement, dread

topic posted Fri, August 21, 2009 - 2:49 AM by  S
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I'm really excited that I am going to the Las Vegas Intensive! I can hardly wait! But the day after I get back, I have to go have a skin biopsy. It is part of an attempt at a diagnosis. My doc suspects lupus. I am asking that nothing of that sort be put on my record because their diagnostic tools are so undependable. I have told her that she can suspect all she wants and monitor as if it were the case, but until there is actual evidence of damage to any of my systems, we will operate under the undiagnosed and use alternative therapies until necessary to change to pharmaceuticals. I have tested negative for the r/a, but she says that it is common to test neg. for that, yet still have lupus. My significant other wanted me to wait until I could better afford to go to the intensive, but I want to do some things while I still can! I have had some days that I know I would not have been able to dance, and I have this terrible fear of no longer being able perform. My goal has always been to dance til I die! If I live to be 80, I want to go out on a stage and belly dance at 80!
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S
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  • Re: excietement, dread

    Sat, August 22, 2009 - 5:41 AM
    I think your attitude and persistance with being as active as possible will serve you well. I don't blame you for wanting to operate in the 'undiagnosed' catagory. However, whatever treatment, alternative or pharmaceutical that can best forestall the progression of the disease process should be considered. It is not uncommon to have a patient on dialysis whose primary cause of kidney failure is complications from Lupus, and they are young, some as young as their early twenties. Just something to be aware of. Your course of treatment is best determined by you and your physician. I wish you the best for the future. Enjoy your workshops and post some pictures for us!

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