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  <title>DISINFORMATION's topics - tribe.net</title>
  <link rel="alternate" href="http://tribes.tribe.net/disinformation/threads/atom" />
  <subtitle>Tribe.net. Local Connections</subtitle>
  <entry>
    <title>Patient advocacy organizations advocate 4 big pharma</title>
    <link rel="alternate" href="http://tribes.tribe.net/disinformation/thread/f451aad1-a6f4-4b59-a556-dd1567e17269" />
    <author>
      <name>Leslee</name>
    </author>
    <id>http://tribes.tribe.net/disinformation/thread/f451aad1-a6f4-4b59-a556-dd1567e17269</id>
    <updated>2008-05-10T20:26:46Z</updated>
    <published>2008-05-10T20:26:46Z</published>
    <summary type="html">&lt;div&gt;
&lt;br/&gt;The British pharmaceutical industry will have to make public their support for patient organizations 
&lt;br/&gt;
&lt;br/&gt;http://www.pmcpa.org.uk/files/sitecontent/code06use.pdf 
&lt;br/&gt;
&lt;br/&gt;This is a good start. Now we need to get the same code of practice passed here. 
&lt;br/&gt;
&lt;br/&gt;More detailed requirements for pharmaceutical companies’ relationships with patient groups and health professionals will be included in the revised ABPI Code of Practice which comes into effect on July 1.Many of the changes relate to even greater transparency, and include: 
&lt;br/&gt;
&lt;br/&gt;• Companies will have to make publicly available a short description of their support for patient organisations for both financial and significant indirect support. 
&lt;br/&gt;
&lt;br/&gt;• Sponsorship declarations must accurately reflect the nature of the company’s involvement. 
&lt;br/&gt;
&lt;br/&gt;• It will be a breach of the code to fail to disclose details on ongoing clinical trials. 
&lt;br/&gt;
&lt;br/&gt;• Companies will need to have a contract for health professionals and others employed as consultants, and are strongly encouraged to require consultants to declare this as an interest. 
&lt;br/&gt;
&lt;br/&gt;• Companies are also encouraged to make publicly available information about donations and grants to institutions etc that support healthcare and research. 
&lt;br/&gt;
&lt;br/&gt;As well as changes based on the two codes of the European Federation of Pharmaceutical Industries and Associations (EFPIA), others include heightening awareness of the need for health professionals to report adverse drug reactions (ADRs). 
&lt;br/&gt;
&lt;br/&gt;“The ABPI Code of Practice is continually evolving to ensure that the pharmaceutical industry and its stakeholders can have maximum confidence in the standards set for ethical and responsible behaviour of companies and staff,” said Chris Brinsmead, President of the ABPI. “In this, the 50th year of the ABPI Code of Practice, the ABPI has not only agreed to revisions to implement the new requirements of the EFPIA code – as we are obliged to do – but also made further amendments to reflect experience, comments and suggestions received since the introduction of the 2006 code.” 
&lt;br/&gt;
&lt;br/&gt;Other changes include: 
&lt;br/&gt;
&lt;br/&gt;• More guidance about meetings and hospitality. 
&lt;br/&gt;
&lt;br/&gt;• Additional limitations over the supply of samples. 
&lt;br/&gt;
&lt;br/&gt;• The publication of interim case reports when publication of the final report is delayed because the company’s procedures require audit. 
&lt;br/&gt;
&lt;br/&gt;• Advertisements for the outcome of certain cases will now appear in the nursing media as well as in medical and pharmaceutical journals. 
&lt;br/&gt;
&lt;br/&gt;The changes have been approved by the ABPI following consultation, and will come into effect on July 1 with a transition period. Comments, proposals and suggestions on the code are always welcomed and, where relevant, will be considered for possible inclusion. 
&lt;br/&gt;http://www.pmcpa.org.uk/ 
&lt;br/&gt;_________________ 
&lt;br/&gt;
&lt;br/&gt;I would like to see this taken one step further. 
&lt;br/&gt;
&lt;br/&gt;I believe that any so called "patient advocacy organizations" who are taking money from The pharmaceutical industry should be banned from testifying at FDA hearing. 
&lt;br/&gt;
&lt;br/&gt;In the past these "patient advocacy organizations" have been used to promote drugs that are NOT in the best interests of patients. 
&lt;br/&gt;
&lt;br/&gt;Learn more here. 
&lt;br/&gt;
&lt;br/&gt;http://theeffexoractivist.org/forum/viewtopic.php?t=375 
&lt;br/&gt;
&lt;br/&gt;http://theeffexoractivist.org/forum/viewtopic.php?t=1843 
&lt;br/&gt;
&lt;br/&gt;http://theeffexoractivist.org/forum/viewtopic.php?t=490 
&lt;br/&gt;
&lt;br/&gt;http://theeffexoractivist.org/forum/viewtopic.php?t=2028 
&lt;br/&gt;
&lt;br/&gt;http://theeffexoractivist.org/forum/viewtopic.php?t=536&lt;/div&gt;
				&lt;div&gt;
			posted in
			&lt;a href="http://tribes.tribe.net/disinformation"&gt;DISINFORMATION&lt;/a&gt;
			- 0 replies
		&lt;/div&gt;</summary>
    <dc:creator>Leslee</dc:creator>
    <dc:date>2008-05-10T20:26:46Z</dc:date>
  </entry>
  <entry>
    <title>What Should I Read Next?</title>
    <link rel="alternate" href="http://tribes.tribe.net/disinformation/thread/3c3b15f7-7ec0-4403-bcd3-52078f8a2e2f" />
    <author>
      <name />
    </author>
    <id>http://tribes.tribe.net/disinformation/thread/3c3b15f7-7ec0-4403-bcd3-52078f8a2e2f</id>
    <updated>2008-04-16T16:12:04Z</updated>
    <published>2008-04-13T07:28:57Z</published>
    <summary type="html">&lt;div&gt;the only Disinfo book i have is " Book of Lies "
&lt;br/&gt;
&lt;br/&gt;i really enjoyed it 
&lt;br/&gt;\
&lt;br/&gt;so whats next?&lt;/div&gt;
				&lt;div&gt;
			posted in
			&lt;a href="http://tribes.tribe.net/disinformation"&gt;DISINFORMATION&lt;/a&gt;
			- 4 replies
		&lt;/div&gt;</summary>
    <dc:creator />
    <dc:date>2008-04-13T07:28:57Z</dc:date>
  </entry>
  <entry>
    <title>Disinfo DVD... Ze Bible</title>
    <link rel="alternate" href="http://tribes.tribe.net/disinformation/thread/8024ddc6-72b9-4168-8f02-224e68455d2f" />
    <author>
      <name>Anesthesiak</name>
    </author>
    <id>http://tribes.tribe.net/disinformation/thread/8024ddc6-72b9-4168-8f02-224e68455d2f</id>
    <updated>2008-04-16T04:22:22Z</updated>
    <published>2008-04-14T05:23:19Z</published>
    <summary type="html">&lt;div&gt;The Disifo.con part of the two disc DVD i bought 3 years ago  changed my life.
&lt;br/&gt;
&lt;br/&gt;I bought the DVD of the series after stumbling upon the  Disinfo Interview book and buying and devouring it. From there i got into Grant Morrision and Alistar Crowely and Douglass Rushkoff and  thus bought books...and it tumbled into  my current view of the world. Very influential...and I watch the Convention DVD more than the actual series to remind me of  how liquid reality is and whats controling who...really.
&lt;br/&gt;
&lt;br/&gt;&lt;/div&gt;
				&lt;div&gt;
			posted in
			&lt;a href="http://tribes.tribe.net/disinformation"&gt;DISINFORMATION&lt;/a&gt;
			- 3 replies
		&lt;/div&gt;</summary>
    <dc:creator>Anesthesiak</dc:creator>
    <dc:date>2008-04-14T05:23:19Z</dc:date>
  </entry>
  <entry>
    <title>Disinfo on Myspace</title>
    <link rel="alternate" href="http://tribes.tribe.net/disinformation/thread/5107298b-7d02-4eca-acf4-75529a7806db" />
    <author>
      <name>Anesthesiak</name>
    </author>
    <id>http://tribes.tribe.net/disinformation/thread/5107298b-7d02-4eca-acf4-75529a7806db</id>
    <updated>2008-04-14T05:25:11Z</updated>
    <published>2008-04-14T05:25:11Z</published>
    <summary type="html">&lt;div&gt;http://profile.myspace.com/index.cfm?fuseaction=user.viewprofile&amp;amp;friendid=244081978&amp;amp;MyToken=ee4b105c-ca8c-485f-92ed-4dbbe16dae69&lt;/div&gt;
				&lt;div&gt;
			posted in
			&lt;a href="http://tribes.tribe.net/disinformation"&gt;DISINFORMATION&lt;/a&gt;
			- 0 replies
		&lt;/div&gt;</summary>
    <dc:creator>Anesthesiak</dc:creator>
    <dc:date>2008-04-14T05:25:11Z</dc:date>
  </entry>
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