Camurati Engelmann's Disease

public - created 03/07/06
"Camurati Engelmann's Disease" (CED), or "Progressive Diaphyseal Dysplasia" as it is also known, is an extremely rare, genetic bone disorder that causes a great deal of pain to those to have it.
I have suffered with it since I was 3 years old and I would love to hear form anyone else who has, or is afftected by this horrible condition!
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Christina
United Kingdom
RE: need some more information about the camura...  topic
Chris needs some love!!  topic
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Orbital Canal Decompression  topic
Hi, i'm new and i have CED  topic
CED Questionaire  topic
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cozaar  topic
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Losartan (Cozaar)  topic
What is Camurati -Engelmann's Disease?  topic
A very warm welcome  topic
Research - Is there any going on?  topic
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Prozac and bone mass  topic

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