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Camurati Engelmann's Disease

public - created 03/07/06
"Camurati Engelmann's Disease" (CED), or "Progressive Diaphyseal Dysplasia" as it is also known, is an extremely rare, genetic bone disorder that causes a great deal of pain to those to have it.
I have suffered with it since I was 3 years old and I would love to hear form anyone else who has, or is afftected by this horrible condition!
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Christina
United Kingdom
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