Hello Everyone,

I hope you are all well.

A few years ago Christina sent an email to some of us, requesting each person fill out a Camurati Engelmanns Disease questionaire she had compiled. The results were very interesting. Perhaps it is time that we do this again, except as a blog with members adding their answers. We can include questions such as:

1. The age of your CED diagnosis?
2. Has CED occured in your family previously?
3. Where is the pain in your body?
4. What are your symptoms?
5. What triggers a flareup, or causes you more pain?
6. What treatments help you?
7. What medications haven't helped you?
8. Have you had your CED gene tested? Etc.

I still have a copy of the original email. Perhaps we could show the completed questionaire to our doctors. It would also be very helpful for if you wanted to quickly find out if anyone has had a problem with a new medication, trial a different treatment (such as heat therapy), or check if others have a similar symptom. What do you think?

Take care everyone, talk to you soon.