Hello my name Lillian from Phoenix, Arizona. I am 37 years old and would love to be able to talk to some of you via email. I do not have access to the internet full time, but when I do email would be much easier for me to check.

I have noticed that everyone here experiences the same pain or close to the same as I do, but I was curious if anyone else here has been experiencing a growth in bones? My left arm has grown significantly as well as my legs. The bones seem to be growing in width rather then length and are becoming very noticeable.

I am not sure if the growth is because of the steroids, but I am noticing that as my disease progresses and my bones get bigger I am being turned down by more and more doctors here in Arizona.

I would love to hear from some of you guys and your experiences with doctors. Is there a specialist you guys recommend? At this point I would love to speak or meet any doctor who can give me some type of answers, Instead of just being turned away.

Please email me with your response at lil.boop@hotmail.com again I understand you have your own lives. But I would really appreciate a response from someone who can understand my pain and where am coming from.