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Hey guys,
I hope you are all well. Below I have included links to several websites that have information about CED for all of the CED Tribe members. I found these on Google and Yahoo by typing in 'camurati engelmanns disease'. I felt that these were the best researched websites, providing clear, concise, detailed and relevant information about the disease. Please feel free to add more as you find them.
Take care,
Lauren
* Engelmann Disease infomation on Healthline - www.healthline.com/galecont...n-disease
* GeneReviews of CED - www.genetests.org/query
* OMIM CED 131300 - www.ncbi.nlm.nih.gov/entrez/dispomim.cgi
* Office of Rare Diseases - rarediseases.info.nih.gov/asp/d...fo.asp
* The Journal of Medical Genetics, CED: Review of the clinical, radiological and molecular data of 24 families and implications for diagnosis and treatment (Dr Wim Van Hul)- jmg.bmj.com/cgi/content/full/43/1/1#T2
The abovementioned journals and websites are in no way connected to this Tribe or support its views, opinions or recommendations. They have been included purely as readily accessible information about CED for people with the CED disease.
I hope you are all well. Below I have included links to several websites that have information about CED for all of the CED Tribe members. I found these on Google and Yahoo by typing in 'camurati engelmanns disease'. I felt that these were the best researched websites, providing clear, concise, detailed and relevant information about the disease. Please feel free to add more as you find them.
Take care,
Lauren
* Engelmann Disease infomation on Healthline - www.healthline.com/galecont...n-disease
* GeneReviews of CED - www.genetests.org/query
* OMIM CED 131300 - www.ncbi.nlm.nih.gov/entrez/dispomim.cgi
* Office of Rare Diseases - rarediseases.info.nih.gov/asp/d...fo.asp
* The Journal of Medical Genetics, CED: Review of the clinical, radiological and molecular data of 24 families and implications for diagnosis and treatment (Dr Wim Van Hul)- jmg.bmj.com/cgi/content/full/43/1/1#T2
The abovementioned journals and websites are in no way connected to this Tribe or support its views, opinions or recommendations. They have been included purely as readily accessible information about CED for people with the CED disease.
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Re: What is Camurati -Engelmann's Disease?
Wed, April 11, 2007 - 6:51 PMThanks to Kurt (Hannah's Dad) for this tip.
* PubMed site, journal articles on CED (Search: camurati-engelmann [All Fields] OR progressive diaphyseal dysplasia [All Fields] ) -
www.ncbi.nlm.nih.gov/entrez/query.fcgi