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... and I am always sick. I have had a severe case of IBS for over 15 years now. The slightest bit of stress makes me physically ill. It has improved a lot since starting to dance but I still have to accept that I will be sick in the days leading up to a performance and for a good 1-2 weeks afterward. It is worth it of course but in between performances I am having a hard time staying motivated when I feel horrible, have no energy at best, trouble getting out of bed at worst, and my mind feels like mush.
How do you guys stay motivated? How do you care when it's hard to care enough to even eat?
How do you guys stay motivated? How do you care when it's hard to care enough to even eat?
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Re: Staying motivated when sick?
Wed, August 19, 2009 - 4:56 PMOh Ariadne, I know what it's like. I have severe asthma and everything sets it off. Sometimes I'm out of the action for months and years at a time. I always go back though. I've had pneumonia twice this year and I'm still not back at the gym. Some weeks I can only sit and watch the other dancers. But the thing is...I love it! I love the music, the clothes, the dancing, and the talking about it. When I am at my worse I just rest and read books and magazines. When I start to feel better I watch my videos. I have one with both Sharon Kihara and kami Liddle and it's brilliant. And when I can I do belly rolls and arm exercises while sitting down watching TV or what not. And when I can I go to class and watch or participate depending on how well I'm feeling. It's just one of those things that if you love it, you'll go back to it when you are feeling better. Take care of your health first and then worry about the belly dance. -Freya -
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Re: Staying motivated when sick?
Thu, August 20, 2009 - 6:18 AMI too understand. I suffer from an autoimmune disease and any stress on the body (good or bad) sets off a myriad of issues. For those who don't udnerstand I tell them to picture waking up everyday as if you have just gotten the flu and then add major PMDD. LOL Medication helps but it doesn't cure and the world of medicine still has much to learn. The most difficult aspect is the irregularity. I don't know when I'll have a good or bad moment let alone day. What keeps me going, not unlike Frey, is the pure joy and love I have for the art form. To give it up would simply be choosing not to live and I simply refuse to do that at this point in my life. I have worked with and seen those who have danced through far more serious illness and they have given me such strength. Just getting through a performance or intense workshop is an accomplishment and no matter how bad the results, I make sure I drive home with one arm patting myself on the back. Why? because I know what I had to do to get thru it whether anyone else knows or not. I have performed thru adrenal crisis ( which I thought was mere stage fright) and just recently soloed for a crowd with a blinding migraine so bad that I had tunnel vision. I never thought I would become a soloist nevermind in such an incapitated manner. Worrying about being judged, being skinny enough or all the other silly little things we dancers put ourselves thru becomes rather insignificant compared with the strength required to pull it off and with that kind of strength you can accomplish anything you set your mind to.
I have faith I won't always feel this way but for now I must work with it as you do too. I strongly believe if I wasn't dancing I would be far worse physically, emotionally and spiritually. I also know that had I not had this happen I might have never realized just how strong I was. Recognize your own strength, surround yourself with supportive people and keep going to the best of your ability.
A minor note on the IBS: A suggestion that i hope you won't mind. IBS is often misdiagnosed (as it was with myself in my youth, I had a sudden remission and haven't suffered since). Please make sure , with a specialist, that it is in fact IBS and not autoimmune Celiac or Crohns. Because, if it is the latter, there are new treatments and help for those suffering, not to mention, prevention of permanent damage. -
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Re: Staying motivated when sick?
Thu, August 20, 2009 - 9:15 AMThanks guys. It helps to know I'm not the only one and I do love dancing. I know I would be worse off if I wasn't doing it. Sometimes it's just so frustrating though. I recently had a friend (a nurse) tell me that with the exception of my sister (who has CFS) I have the worst health of anyone she knows. Sometimes I wonder what it would be like to never have to think twice about having enough energy or planning out a day and then hoping to be able to finish just one thing on my list. Sometimes I'll have a good day and it's absolutely amazing how much I can do... but it never lasts for more then 2 days before I'm down again and then I wonder what it would be like to feel that way all the time. I think most people just don't understand how lucky they are, they take their health for granted and can't imagine it any other way.
I wish I knew other dancers personally who knew what it was like so I could commiserate on a bad day but then I guess that's why I'm here now. You are right Anne, I need to remember what it takes to do what I can and be happy for that instead of worrying about not measuring up to everyone else. It isn't always this bad and it will be better.
As for a misdiagnosis, I wonder sometimes but when I look up the symptoms for the usual (autoimmune Celiac or Crohns) they just don't match up. Personally I think it is so bad because it's not just the IBS but allergies to dairy, nickle, fur/dander, and hay fever as well, which of course set off the IBS....
...*sniff* but I can't live without chocolate! lol At least every once in a while. -
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Re: Staying motivated when sick?
Thu, August 20, 2009 - 10:15 AMHmm...Have you tried detoxing yet? I may have had something similar as a teenager. I was also on the pill and that kind of paralysed my peristaltic movements to the point that I once had to go to the hospital for that. My guts never worked all that well, I had a sensitive stomach too.
At the age of 20 I moved out, got my own apartment, made my own food (I had become vegetarian by then more or less and now had a chance to eat exactly the way I wanted and within a month all my troubles were gone. Well, almost all.
Many,many years later I read a book on premenopausal weight gain and how to prevent that and it said to leave out most of the carbonhydrates. My mother had already told me as a child that I seemed to dislike all the carbonhydrates. I did not like to eat potatoes, I did not like bread, I did not like rice. I was made to eat them anyway, and suffered many stomach upsets and food poisoning as a child. So, anyway, after reading that book, I kicked the carbonhydrates from my lunch menu, and stuck to just eating fish or meat and vegetables. I had protein shakes for breakfast and the occasional yoghurt. And my usual tea. And voila- after some time my guts started working normally. I also felt much better. Never again that stuffed, sluggish feeling. When I finally read "Eat right for your type" which explains the right diet for each bloodtype and all the aggravating foods too for the four types (A, B,AB, O) I found out that I had gravitated instinctively towards all the stuff that was good for me (A-type) and avoided the aggravating foods, I had never liked them anyway, and they always made me feel bad. And lo and behold, carbonhydrates were among them!
Then I did a raw food cleansing fast. Nothing but raw vegetables, boiled kidney beans and feta cheese for almost a week. Three salads a day. It was like pipe cleaning. Amazing!
So, as allergies and auto-immune reactions of often caused by toxines (all of which are stored in the body fat, pass through the intestines, get processed in the liver) removing the toxines from your body does make a difference.
Another thing that works for that is chlorella or spirulina algae tablets. Their molecules get glued to the toxines in your guts and the whole thing leaves your body together.
The way to get the toxines removed from your bodyfat is lymphdrainage, computer aided cellulitis treatments and such.
You will be surprised how much lighter you feel when they are gone. You can think clearly, your legs feel light, it has the most amazing effect on your mood (the negativity starts to disappear).
Of course, bellyrolls and all that will be good for you too, but I think you should start detoxing first before you push yourself beyond your limits in dancing.
Hope this helps.
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Re: Staying motivated when sick?
Thu, August 20, 2009 - 12:26 PMNot really, but thanks for trying. You see de-toxing doesn't work with IBS, in fact it can make it worse because it just puts the stuff back into circulation. Dark greens are bad for me in large amounts because of the nickle content, and rice among certain other carbs are easy on the digestive system during an attack. So it's a case of what works for one thing doesn't for another.
I'm familiar with the blood type thing and have always found it interesting. According to that I should be eating "soy proteins, grains and vegetables" which I already do (I probably eat far to much protein right now though). I am afraid however there just isn't much there to back the theory up scientifically when you get down to it.
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Re: Staying motivated when sick?
Thu, August 20, 2009 - 11:39 AMMy sister is a doctor and she tells me how bad my health is all the time. And I just wish she understood how hard everything is for me. My other sister is starting to understand as she was recently diagnosed with Lupus, but for years the two of them have said, "It's all in your head", "you just need to loose weight" (although the worst asthma attack I ever had was when I weighed only 98 lbs!), "just make yourself get up and you'll feel better"! I just wished that they would understand that I am a very determined person, but when I can't walk from my bedroom to the living room without getting out of breath, how can I go to the gym that day? It is great to be able to talk about it with people who understand. -Freya -
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Re: Staying motivated when sick?
Thu, August 20, 2009 - 12:38 PM"It's all in your head" "just make yourself get up and you'll feel better"
I know what you mean. My sister with CFS had to put up with that for several years while I lived upstate. When we moved back she nearly cried when I told her of course it wasn't in her head and they didn't know what they were talking about. The tried that with me and I pushed back and told them to lay off her. It helped that I could quote my doctor, "you trying to get up and do something when you have no energy is like trying to beat a dead horse. It just isn't there and it won't be." Most people can exercise and their adrenals with start moving and give them a boost. When you have a condition that effects the adrenals or thyroid that just doesn't happen. I would imagine breathing would be necessary too. ;)
It really is nice to be able to talk to others who know what it's like. -
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Re: Staying motivated when sick?
Thu, August 20, 2009 - 6:38 PMI know all too well what its like to plan out the day so as not to exhaust energy. It's like a battery that needs recharging. I know what its like to be told its in my head as well...24 years of it. An accidentally ordered antibodies test proved it was not. The CFS is probably thyroid, in fact, you may find that you have a prevalence of autoimmune issues in the family. Start gathering information from 1st and 2nd generations in the family, you might be quite suprised. If true, get the Celiac/Crohns tests done anyway and then get your sister to be tested for thyroid antibodies...not TSH but autoimmune anitbodies. All you have to do is say, " Its in my family and I am concerned" and nothing more. Worst case if they find nothing you are back where you started. Best scenario is that you will start getting the proper treatment. And remember...you are FAR from alone. -
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Re: Staying motivated when sick?
Fri, August 21, 2009 - 5:25 PMThyroid problems are on the rise! My mom and are both on Synthroid to increase our thyroid production. I've lost a little weight and have a bit more energy since starting to take them. I get crazy bowel problems too. Usually when I'm nervous about something, but it clears up right away. Best of luck with this. -Freya
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Re: Staying motivated when sick?
Fri, August 21, 2009 - 5:34 PMHmmm... as a matter of fact my sister and I are the second generation to have this issue and it is much worse. When we have the money I'll just have to suggest we go take care of that together. Thanks! -
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Re: Staying motivated when sick?
Sat, August 22, 2009 - 6:09 AMAnd...we'll be seeing more of it too because the original range is off. Insurance companies and general physicians are lax to get on board for a variety of reasons. As well...sometimes the range doesn't tell the whole story as I have recently learned, like say when someone has both Hypo and Hyper problems. Slowly more people are going to *suddenly* develop thyroid issues and be diagnosed. Tough blow for Pharma companies though because Synthroid and Levoxyl is much cheaper then the anti-depressants being dispensed for all the supposed pre-menopausal women who are just a little on the crazy side ( why can't they see their fatigue and pain is from depression and their anxiety is from being too emotional as women tend to be???) eat too much and just want attention. Sound familiar?
Gosh don't get me started...if I wasn't feeling so crappy and getting old here I would be headed to medical school. Someone needs to shake things up a bit!
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Re: Staying motivated when sick?
Sat, August 22, 2009 - 5:00 PMlol maybe that is what it will take to fix things. One of us crazy woman going in there and beating some heads together. lol
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Re: Staying motivated when sick?
Sun, August 23, 2009 - 5:06 PMI have my own set of health challenges. Just spent 2 months recovering from a stress fracture. I dance when I can,and take it easy when I must. To get though my last performance I did take a powerful pain pill because I just hurt so much. Part of what I do is to accept my time outs from actual dancing and take the time to 'feed my muse'. Meaning I spend the time watching other performers videos, going to a varietyof local performances just to be in the audience and listening to new music.
Part of my program is I have an awesome set of medical folks backing me: a MD, a Chiropractor, an acupuncturist, a massage therapist and a PT who encourage my dancing and also tell me when to slow down. -
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Re: Staying motivated when sick?
Sun, August 23, 2009 - 8:21 PMI'm going to start going to my mom's acupuncturist. Since she's been going her pain level is half what it was just on the pills. I think it's worth a try and it's only $20 a session through the school near my house. -Freya
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Re: Staying motivated when sick?
Sat, August 29, 2009 - 3:45 PMAs someone diagnosed with both CFIDS and Fibromyalgia I can totally sympathize with you. It's frustrating when your body doesn't want to cooperate. I fight with (on a normal basis) muscular and joint pain, migraines (a lot lately), stomach issues, extremely low blood pressure, hypoglycemia, anemia, and overwhelming fatigue. It's hard to get out of bed most days just to go to work, let alone go to two dance classes a week and practice.
I was once a very active person. When this hit me in my 20s, I was devastated and depressed. It took quite a few years to learn how to manage my two conditions. Now, I push myself to do the needed things, push a little harder to do those things that I enjoy, even if I'm tired, or not 100%.
HOWEVER...when I need rest, I take it.
My biggest challenge to date was going to Deb Rubin's SF Immersion Mecca. 6 days of workshops. 5 hours a day. 30 minutes of walking per day to the studio and back to the hostel I was staying at. I tried to prepare myself before this trip, but my body kept betraying me, and even on the plane I wondered if I was going to be able to make it through 1 day, let alone 6.
I made it through 5. On day 6, my body said enough and I ended up sitting down 1 hour into Rachel Brice's 4 hour workshop. My blood sugar dropped, my blood pressure, I believe, dropped with it. I was very frustrated, even angry with myself, initially. But on the flight home I realized how much I managed to actually do that week. I made it through all the workshops, except that one. That was pretty admirable when I realized how out of shape I really am.
The reason I did make it through is that I rested when I needed to. I wanted to go out and sight see but I knew I was tired and that I would never make it through the week if I didn't get the rest I needed.
I guess what I'm trying to say in all this is that sometimes, you need to rest. And sometimes your body will fight you. You are definitely not alone and the fact that you can do what you CAN do is still very admirable. It's hard to keep going when you really just want to stay in bed. It's a difficult battle. But you can do it. I think of it as a tiny battle won for that day when I can make it out of bed. Then another when I can get through a day at work. If I can get through a class, that's another battle. If I make it through it all that day, then that's a war won.
If you ever need to vent or need some pick me up, feel free to message me. Believe me, if it wasn't for the incredible support system I have, I would never get through the day sometimes. *hugs* -
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Re: Staying motivated when sick?
Sun, August 30, 2009 - 3:47 AMThanks, I'll do that.
It hit me in my 20's too and when they diagnosed it I was told, "you can be cured in 2 years." HA! Now they're saying it stays with you the rest of your life. Oh well.
Maybe I'll just rest more often. That could help... so could sleep. lol (Time to buy some Nyquil, dang cold.) So do the rest of you get sick easily too? If I'm [u]not[/u] catching everything in sight I figure I'm doing well. -
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Re: Staying motivated when sick?
Sun, August 30, 2009 - 10:36 AMOh yes! Sick now...pick up anything and everything. Which...is a stark contrast from childhood where whole classrooms would be wiped out from the measles and chickenpox with me the only one left standing. Maybe that was an early indicator? I think because the immune system is constantly working overtime, it is worn out and thus susceptible to anything that comes our way. Frustrating...and to add to it...I am limited as to what I can take: no ibufrofen and no antihistamines unless I want to endure hyper hell till it wears off. -
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Re: Staying motivated when sick?
Sun, August 30, 2009 - 9:20 PMEwww, no fun. I have to watch out for allergies but I can't imagine going without any antihistamines at all! I would never survive!
I've always been susceptible to illness it's just that much worse with the IBS on top of it now. (I'm sure some undiagnosed allergies played havoc with my immune system.) I was thin back then though so everyone assumed I was healthy.... and would tell me how lucky I was.... pfft. "Girl, if you can bike 5-7 miles without pausing and not even be slightly winded for breath don't talk to me about how you're out of shape." You can't tell by just looking at someone what is really going on. -
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Re: Staying motivated when sick?
Mon, August 31, 2009 - 2:45 AMNo..you can't ever tell ANYTHING by looking at someone. ;)
Many scientific research studies now point to a connection between allergies and autoimmune disease..........not to mention...autism. -
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Re: Staying motivated when sick?
Mon, August 31, 2009 - 9:17 AMMy sister got her masters in immunology prior to going to medical school and she told me that inhaled allergens can effect us in ways that the scientific community is only beginning to understand. That they can literally effect how fast we recover from illness and how often we get ill. I know that my asthma is much worse when my allergies are bad. -Freya
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Re: Staying motivated when sick?
Mon, August 31, 2009 - 11:33 AMThat is what I have read too. IBS for example, I have read that it could be caused by an undiagnosed dairy or wheat allergy combined with other factors like excessive stress and a large dose of antibiotics. I can believe it since I had all three when I came down with it though I didn't know I was allergic to dairy until 4 years later (my mother knew but never told me... people used to think about allergies sooo differently back then). My body just shut down and has never really restarted.
I have thought about it a lot though and I don't think these are new things, just that we have been able to diagnose them better now with modern medicine. I read a lot of historical stuff and I come across information all the time about this person or that person being of a sickly disposition and all kinds of treatments they were put through. Think of Bath and how it was a destination for people who were feeling poorly to drink the waters, which if it has excess oxygen in it may have actually worked for some. There is also the way that people with sickly dispositions were often closed inside, fresh air was supposed to be bad for them. If they had allergies depending on the time of year that could be very true.
But when all is said and done I try and think of the blessings I have gained from this. It forced me to slow down and take things one step at a time. I am sure I do enjoy the things I can do more then I would if everything came easy.
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Re: Staying motivated when sick?
Mon, August 31, 2009 - 4:29 AMIt's an interesting relationship, our minds to our bodies, even our hearts. Intuition and learning our subtle cues. I have had to learn to listen intently to what each is trying to tell me.
So many of the ladies here have said some very interesting things.
I liked the comment made about still loving to watch and be around it even if active participation was not possible.
That's passion. ;D
hopefully we will always participate to whatever level nutures our passion.
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Re: Staying motivated when sick?
Sun, September 6, 2009 - 4:02 PMSmall update. There was a family gathering this weekend and as we got to talking I found out that my sister who has CFS is specifically Hypoadrenia and... so is the sister who used to give her a hard time about it. I'm not sure if that is irony or karma. Either way that makes three of us in the family now not including my mother so it defiantly runs in the family. -
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Re: Staying motivated when sick?
Mon, September 7, 2009 - 7:56 AM[not sure if that is irony or karma]
Probably a little bit of both...;) Doesn't surprise me. I run a family web site and in addition to finding out I had over 60 cousins here in the US, I was able to survey them and found out a medical history that shocked all of us. I now list the ailments along with familial ties so the information is there for everyone to access and research.
The biggest issue with hypoadrenia is that many in the medical field do not recognize its legitimacy, in and of itself. I will be the first one to tell you that with a science and math degree, I am least likely to prescribe to anything homeopathic ( and NEVER treat myself) but the research is intriging. I have an article for you to read: autoimmunedisease.suite101.com/ar...ncy
If you find difficulty getting proper testing or can't afford it thru conventional methods there does exist other options. Certain states offer medical lab testing where you can order your own tests for reasonable fees. I might also suggest getting these ailments evaluated by an Endocrinologist, GPs are just not qualified. -
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Re: Staying motivated when sick?
Tue, September 8, 2009 - 12:39 PMProbably. :)
I'll pass the article on to my sisters, thanks. I'm aware that hypoadrenia isn't widely accepted by mainstream medicine which is why her official diagnosis is Chronic Fatigue, if you don't know what is causing it.... She is being treated by a kinesiologist who is up on all the current treatments and what is and is not working, not a GP. The GP while he could diagnose the CFS and referred her to a specialist who confirmed it, just couldn't actually treat it. -
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Re: Staying motivated when sick?
Fri, October 9, 2009 - 6:54 PMHello all
Arghhhh! I feel for you! Been fighting chronic fatigue symdrome/adrenal burnout/fibromyalgia syndrome (depending which dr/naturopath) or depression, self absorption and laziness (depending which all knowing busybody !!) for most of my life. Ironically stumbled aross this tribe whilst on a flat day unable to practise.
I have tried many diets, found combinations of herbs/supplements/adrenal fatigue diet/treatment of intestinal candidiasis and Balanocystis the only way I've moved forward, trying any one thing didn't help.
As for motivation practise this is what has worked for me
1. Teaching
Makes me drag my arse off the couch, as only beginner /intermediate classes not too technically taxing. i suffer from brain fog a lot so have to prepare a detailed written plan. I limit workshops I do/teach to avoid burnout - plus travel and different food an issue
2. Prioritising
One has to buy food and cook, pay bills etc, but I have given up on using the rest of my limited energy on keeping the house spotless if it means there's nothing left to dance with. And I limit the amount of performing to less than I would like so I don't have meltdowns when other aspects of life get hectic
3. DVDs -
yay for pause buttons. Zoe's there in my lounge room when I feel up to it, and you can do just parts of vidoes if stuffed
4. Allowing inspiration:
When I'm in an energy slump and brain fogged, it's hard to dance fabulously. Often lying on the couch I'll get tiny bits of choreos, and I'm too stuffed to be able to transcribe so just video it on the camera or phone for future rreference. Also in the bath with funky music on. Or just watching you tubes/DVDs...may not feel like you're doing much but you are feeding the unconscious with movements and images.
5. Slo mo
If I'm too tired/unco for turns or fast work, I'll just go over combos or movements in half time..actually very good for cleaning up your techinique. I find big doses of tribal kill my arms when I am in an energy slump so do ten inutes at a time then come back to it. Also I do my Upper body work sitting or kneeling
6. Forgivenenss of self
"Perfectionism is the death of creativity" - don't know who said it. So is comparison, resentment or bitterness. In fact any manfestation of ego not going to do you any favours with chronic health issues. (Easier said than done, we all have our vents and pity parties now and then..express and release, don't wallow)
If you really aren't up to it, be Ok with that and don't self flagellate....unless that gets you off of course ;-)
Your body is working twice as hard as most people just to get up, make breakfast and have a shower. Been awake for less than an hour and to your body, you've done the equivalent of running a marathon..credit is due. We are the canaries in the coal mines with the sensitive bodies telling then rest of the species we cannot live/breathe/eat pollution, they just haven't twigged yet. -
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Re: Staying motivated when sick?
Mon, October 12, 2009 - 12:03 PM<5. Slo mo
If I'm too tired/unco for turns or fast work, I'll just go over combos or movements in half time..actually very good for cleaning up your techinique. I find big doses of tribal kill my arms when I am in an energy slump so do ten inutes at a time then come back to it. Also I do my Upper body work sitting or kneeling>
I've started doing that recently. It is a nice way to clean up my technique and I find it suffers all to much during a slump.
<We are the canaries in the coal mines with the sensitive bodies telling then rest of the species we cannot live/breathe/eat pollution, they just haven't twigged yet.>
lol I have never heard it put that way before. Where did you come up with that?
I ran into something recently that has helped a little, extra vitamin C. It's not a huge difference but sometimes it means being able to get out of bed. I was taking it to help with the allergies and it seemed to do a little more then that. Then my husband comes home and says he heard a Dr. on the radio who is of the opinion that our society are for the most part inflicted with a light case of scurvy due to our horrible nutrition. I am not sure what to think of that but it does make me wonder.
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