Hi all, I hope this works, I've been looking for people to help support me through this for a while. I have PCOS, a hormonal issue that occurs in many women these days, my hubby and I have been trying to get pregnant for about two years now. I know it will happen when it happens, and if not, adoption will probably be our next step. I just really wanted a place to come to when I run into the "downs" of the entire thing. For me, sometimes trying to get pregnant is fun, but other times, when I get my period at the end of the cycle, it is such a let down. There is always the hope of conceiving, sometimes it hits harder than others. At this point I really don't want to try western medicine, I take herbs to regulate my cycle, but still only experience my moon cycle eight times a year or so. Come women, let's join together and support and love eachother through this time.
posted by:
Goofball Jess
SF Bay Area
  • Re: Anybody else experience the let downs?

    Wed, November 8, 2006 - 11:48 AM
    Hi! Thanks for creating this tribe. I was told I have PCOS when I was 16 years old and through years of treatment, I did get pregnant. I have a 10 year old daughter. Check out my pictures... she is a true miracle! I wish you well in your journey to conceive. It does happen and the treatments are getting better.

    A friend of mine has been trying for 12 years to get pregnant and she is due in Dec.! I'm going to invite her to this tribe and I am sure she will have wonderful words of wisdom for everyone.

    Amy~
  • Re: Anybody else experience the let downs?

    Wed, November 8, 2006 - 8:12 PM
    I also have PCOS. My husband and I tried for four years to get pregnant. In 2004, I started taking Metformin, which helped to regulate my periods somewhat, but did not help me ovulate. In late 2005, I started seeing an infertility specialist at Kaiser. I tried Clomid for a few months, and it seemed to help me ovulate, but I did not get pregnant. I was then switched to Femara, which is actually a treatment for breast cancer (which I do not have).

    During this time, my husband had several semen analyses done. They showed low motility and low count. Our specialist set us up with an appointment to talk about more invasive treatment options, which we were planning to decline because of the cost and low success rate. We were seriously looking into adoption.

    However, amazingly enough, during my second cycle of Femara, I got pregnant. I was shocked, and actually only took a pregnancy test because the next day I was supposed to have some pretty invasive tests done and hadn't started my period yet.

    Our little boy is due 12/27!

    I hated people saying to me, "It will happen when you least expect it." or "It will happen when you stop worrying about it." It happened when it happened. I was still just as worried as always, if not more so. I don't know that I'll ever be able to get pregnant again, or if what worked for me will work for anyone else. I just feel happy that it did happen for us, and hope that everyone else who wants to be a Momma CAN! And, to be totally honest, if I didn't get pregnant, we'd be working on the paperwork for adoption right now...either way, I'd be on the pathway to motherhood, and would have been thrilled with that path, too!
    • Re: Anybody else experience the let downs?

      Thu, November 9, 2006 - 1:29 PM
      Hey LIzz, congrat to you! Questions about the meds you were taking. . . . I tend to be really sensitive, birth control pills always made me depressed, when I'm PMSing, I have about 5 days where I will burst out crying for now reason really. It's actually kind of funny and my hubby and I have started to make a joke out of it because the tears are really uncontrollable at times. My concern with Clomid or any other hormone treatment is that I will get depressed. What was your experience?

      I also find it frustrating when people tell me to "relax". We tried that for a while and it didn't seem to work, like, just having a shag when we thought we ought to and didn't really think about it. When I was diagnosed with PCOS I realized it was probably going to take a little more work than shagging like rabbits. Who knows. Like you said, it happens when it happens. But, I am now finding out, through these pee test strips, that even with the herbs I'm taking, I'm still not ovulating. Bummer.

      I also think about adoption, and even though I would have to mourn the loss of not being able to get pregnant, in some ways I think it is an awesome option to give a child a home who needs it. But I'm not there yet, I'm here, still wanting to get pregnant. C'est la vie.
      • Re: Anybody else experience the let downs?

        Thu, November 9, 2006 - 7:12 PM
        I don't think that depression is a potential side effect of Clomid, but I could be wrong. I have Generalized Anxiety Disorder, and I had no problems with anxiety or depression on either Clomid or Femara. Of course, that's just me. I didn't have problems with it on the pill, either. I have other friends who took Clomid who had hot flashes and the like, but I didn't experience that either.

        I always wanted to staple something to people when they told me to "relax." First of all, I have an anxiety disorder...relaxing is just NOT something that comes naturally to me in anyway. Hehe. And second, my difficulty in getting pregnant had little if anything to do with "relaxing." It's not like my ovaries were sitting around saying, "Well, if she'd only STOP thinking about us for a second, we'll pop out an egg."

        You have your own timeframe with how you'll process your feelings about pregnancy, fertility, adoption and all that comes with it. Please don't feel pressure that you need to be at any particular place in your journey before you're ready to go there.
  • Re: Anybody else experience the let downs?

    Thu, November 9, 2006 - 4:23 PM
    Hi Jess...

    Amy sent the invite to join the tribe...I am the one that she was talking about in her post.

    Hang in there....Almost a year ago, my husband and I gave up trying to have a baby. We decided that the years of trying (infertility treatments: Pergonal shots, clomid, overstimulating, etc...) that we we done...I did not think I could go through it any longer. Back in August of 2005, I started taking Metaformin becasue I was pre diabetic, and I knew that the side effect was possibly pregnancy. I honestly did not think that I would get pregnant. After all these years, I did not think it would be that simple. But low and behold...8 months later, I am having a ababy. I am due on December 31 and I am having a little girl.

    I have been where you have been. I did not want to take western meds, but what I was taking just was not helping...I was on herbal supplements for over 4 years, so I can honestly say that they do not work, they made me feel better and releived some of the symptoms of PCOS, but I did not ovulate.

    My advice to you by a long time suffer of this damn thing we have called PCOS....give metaformin a chance. There are hardly any side effects, and I actually felt SOOOOOOOOO much better when I was on it. I lost about 30 pounds on it and that is when I started ovulating and BAM! To give you a little more of a leg up, I would try it with clomid, anlong with your herbal supplements to curb the clomid side effects and I would try that for at least a year.

    It took only 8 months for me to get pregnant on Metaformin, and I would be considered one of the worst cases of PCOS having ALL but one of the symptoms (hair loss...but its thin).

    Don't give up

    You can do it

    Love you girls!

    Valerie
  • Re: Anybody else experience the let downs?

    Fri, November 10, 2006 - 6:40 PM
    Thank you ladies, reading this is so inspiring and fills me with hope. I have had a lot of thoughts going through my head these days, since I have started this tribe and also talking with my therapist. Since I was 11 years old I had a fear about not being able to get pregnant. I was one of the first girls to start developing, in the 2nd grade I got hair under my arms, then in my nether region followed by breasts, but, i didn't get my period till I was 13. All my friends seemed to develop all at once, not so spread out. I guess as a little girl I though something was wrong with me. I'm so glad I have recognized this fear that has started in me at such a young age, because now, pregnant or not, I can try to heal it, and build my strength. Thanks so much.
    • Re: Anybody else experience the let downs?

      Tue, December 5, 2006 - 11:55 AM
      Howdy! Laura from the PCOS board. Just wondering how you were doing! +++++++thoughts! Laura
      • Re: Anybody else experience the let downs?

        Tue, December 5, 2006 - 8:34 PM
        Hey there, a bit down these days, it's been 54 days since my last period. I havn't gone this long for a while, forgot how stressful it can be. Think the hormone monkey is gotten me as well. I keep thinking "should be any day now". Argh. But, life is a bit stressful right now, renovations on the house, work is crazy, and the holidays are coming up (busy busy busy), so i'm hoping that after Dec things will regulate themselves again. Thanks for asking!
        • Re: Anybody else experience the let downs?

          Thu, December 7, 2006 - 10:07 AM
          (((((((((HUGS))))))))))) I am sorry. I understand! This all really sucks! I hope that AF comes soon, that would help. What are you doing to treat the PCOS? Sorry, I have forgotten.

          Take care, Laura
          • Re: Anybody else experience the let downs?

            Thu, December 7, 2006 - 10:09 AM
            I forgot, I wanted to let you know that it was at about 15 when I started to worry I would never have kids. I remember my mom, sis and I went to the baby store shopping for clothes for my sis who just got pg. I remember having to leave the store. I went to the car and just cried! Take care, Laura
  • Re: Anybody else experience the let downs?

    Sat, September 29, 2007 - 1:17 PM
    I see this tribe hasn't been active in quite a while. Hopefully Jess you'll come back and say you've had a baby in the meantime!

    I have unexplained infertility. I've had an HSG and everything was fine. My husband has had a semen analysis and has high sperm count, high motility, etc. He's in perfect condition. I had my first round of IUI yesterday. My doctor found that I have an overly small cervical opening. She's pretty certain that is way I have been unable to get pregnant. However, I WAS able to get pregnant once before (in Dec of 2005 but I miscarried at 8 weeks 2 day).

    I've been put on antidepressants during all of this. I've had times where it so consumed me that all I could do was cry. Around my period I could hardly function because I was so upset. The antidepressant has given me my life back. I'm on the lowest dose possible. I don't want to detach from life. But I can cope w/ it all now. I feel so much better! And having been told about the problem w/ my cervical opening gives me a little bit of hope back.
    • Re: Anybody else experience the let downs?

      Sun, September 30, 2007 - 3:56 PM
      Hey! Thanks so much for your response. I was hoping to be a little more active in this place, but to be honest I just havn't had much to say. No babies yet for us, but I've gone through a huge change in attitude which is nice. Now instead of obsessing over the situation, I've just kind of placed it in the hands of mother nature. I've stopped taking my temperature every day or peeing on a stick to test my ovulation (which doesn't work for women with PCOS anyway!) and instead, we are just going with the flow and hoping for the best. I can't tell you how much pressure it has taken off of me. I guess that's why I havn't had much to say. While I still hope to go through the birthing process and will have to mourn the loss of this if I don't, I also know that I have no control over it (control is sooooo something I've been trying to let go of these days!). It feels good to share, so thanks for starting up the thread again!

      J
      • Re: Anybody else experience the let downs?

        Thu, October 4, 2007 - 7:01 PM
        I completely understand about not having much to say. After a while there isn't much too say...and you probably don't want to talk about it constantly. I think I've been thru the whole spectrum on it. I stopped taking my temps a year ago. I about went mad w/ that. I was so tired of people telling me to just relax. Relaxing isn't a medical condition. Infertility is.

        Finally though after 2 years of being told that nothing is wrong and that my infertility is unexplained I've been told I have a synotic (?) cervix. I FINALLY have something to work with....to work around.

        If I can give any small bit of advice at all is discuss it with a doctor you trust. There are ways to get around insurance companies to get tests covered. An HSG is normally $1000 and isn't covered when done for fertility testing. My doctor was able to code it and get it covered. There are options that are relatively inexpensive.

        I wish all of us the best on this difficult road. It's the hardest thing I've dealt with. No matter what the outcome (whether biological or adopted) I wish us all healthy and happy babies.
        • Re: Anybody else experience the let downs?

          Sat, October 6, 2007 - 11:39 AM
          Cheers to that, healthy and happy little ones HOWEVER they end up in our family! My hubby and I have started talking about the adoption process. What's cool is that we decided that we would like to adopt as well as have our own child. For so long I was thinking about adoption as a "second" choice, but after doing some soul searching and learning more about the adoption process, I realize that there are so many children out there than need homes. Again, that's not to say I don't want to experience the birthing process, but I also find comfort in knowing that however a child comes into my life will be a blessing.
          • Re: Anybody else experience the let downs?

            Sat, October 6, 2007 - 8:02 PM
            So true!! My husband and I have always intended to adopt at least one child. We want two children. We've decided that no matter how we end up w/ two children that's what we want. We've also talked about the whole global warming issue and problems w/ over population. And we struggle w/ not wanting to make the situation worse. So we reconciled our concerns and beliefs with deciding to adopt at least one child. If we end up adopting both of them we are totally fine w/ that. :)
  • Re: Anybody else experience the let downs?

    Wed, September 3, 2008 - 12:42 AM
    I heard there is a doctor is Colorado that deals with PCOS and does studies on it. He said that 90 percent of the cases are treatable. Michael Swanson--Conceptions Reproductive Associates in Littleton, CO

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