Tribe.net. Local Connections Raven_Starsong http://tribes.tribe.net/livinglupus/thread/478e591d-afc8-4395-ba85-ea649066cd9a 2008-02-02T02:44:22Z 2008-02-02T02:44:22Z

<div>Greetings fellow butterflies-- <br/> <br/>I wanted to pass this info on. I'm working out the finances now so that I can go to this event. It's time to get some legislation passed and get some $$$ into research to come up with better testing, better treatment, and hey, while we're at it...a CURE!!! <br/> <br/> <br/>Now is the time to have your voice heard on Capitol Hill! Join the Lupus Foundation of America in Washington, D.C. for our 2008 Lupus Advocacy Day! <br/> <br/> * Monday, March 10, 2008 - Westin Alexandria Hotel <br/> * Tuesday, March 11, 2008 - Capitol Hill, Washington, D.C. <br/> <br/>Our two-day 2008 Lupus Advocacy Program will begin on March 10th with a training session and dinner at the Westin Alexandria Hotel to discuss how to make the most of your meetings with your Members of Congress. The registration table opens at Noon and the training is scheduled to start at 2:00 p.m. We will have training until 6:00 p.m.; a "mix and mingle" reception from 6:00-7:00 p.m.; and dinner with a guest speaker from 7:00-8:30 p.m. <br/>On Tuesday, March 11th, representatives of the LFA and its chapters, lupus physicians and researchers, and other advocates will travel to Capitol Hill to meet with Members of Congress to inform them about how debilitating lupus can be. We will have an informal breakfast at the Westin Alexandria Hotel starting at 7:00 a.m., load the buses at 8:00 a.m. and head to Capitol Hill. We will try to start with everyone’s meetings on the Senate side from 9 a.m.-Noon; a luncheon in the Dirksen Senate building from Noon-2:00 p.m.; meetings with Representatives from 2:00-4:00 p.m.; and an informal debrief session 4:30-6:00 p.m. <br/>The LFA needs you, your friends, family members, and chapter members to visit your federal Representatives and Senators to urge them to support more funding for lupus research and education. <br/> <br/>To register, go to https://www.lupus.org/newsite/pages/2008AdvocacyDayRegistration.htm. The registration fee for Lupus Advocacy Day is $35 per person, which includes a snack and dinner on March 10th and breakfast and lunch on March 11th. <br/>The discounted room rate for the Westin Alexandria Hotel is $229 per night for the event. The cutoff date to book your hotel room for this discounted rate is February 22, 2008. To learn more, visit this link http://www.starwoodmeeting.com/StarGroupsWeb/res?id=0712044059&amp;key=9F6F. <br/>One other note ... we've had several questions about which airport to fly into. The easiest airport to fly in to for the LFA Advocacy Day is Reagan National Airport (code: DCA). <br/>Don’t let cost deter you -- you may be able to share a room! If you have any questions about the event, please contact Sara Chang at chang@lupus.org or by phone at 202-349-1169.</div> <div> posted in <a href="http://tribes.tribe.net/livinglupus">LIVING! With Lupus</a> - 0 replies </div>

Raven_Starsong 2008-02-02T02:44:22Z http://tribes.tribe.net/livinglupus/thread/1a18445c-49db-40f1-900e-b75d466dfac4 2007-06-20T17:13:06Z 2007-06-15T17:36:01Z

<div>the pain in my joints (mainly my knees, ankles, shoulders and hands) is so bad that some mornings its all i can do to breathe.. any help would be great.. i'm trying accupuncture, vitamins a, e, b complex, an adrenal formula, c.. and something else too (i can't remember). plus i've been taking much to much vicodin to keep working. i've tried many different herbs and such.. plus my doctor is having me try DMSO, but nothing is helping enough to make it copable.. any help would be greatly appreciated. </div> <div> posted in <a href="http://tribes.tribe.net/livinglupus">LIVING! With Lupus</a> - 8 replies </div>

2007-06-15T17:36:01Z Raven_Starsong http://tribes.tribe.net/livinglupus/thread/d5cbf001-9dd6-41aa-9290-5d708d5d5bba 2007-05-09T18:54:37Z 2006-01-17T21:43:04Z

<div>I have been researching herbal and homeopathic remedies for lupus for several months and would love to get feedback from anyone who has tried any of these treatments and what your experience has been. <br/> <br/>My goal with this research is to stimulate remission. In the rare instance that a remission is attained, it lasts DECADES for about 50%. I'm looking for help in finding the right formula to get there and then to share that formula with others FREE OF CHARGE!! I am very frustrated with the so-called natural healers who want to peddle un-tested remedies at ridiculous prices. I believe the healing we find in nature belongs to us all.</div> <div> posted in <a href="http://tribes.tribe.net/livinglupus">LIVING! With Lupus</a> - 3 replies </div>

Raven_Starsong 2006-01-17T21:43:04Z Suzanne http://tribes.tribe.net/livinglupus/thread/90cedb76-290c-4490-88a6-b2d746e09078 2006-04-29T11:37:48Z 2006-04-06T19:41:19Z

<div>Raven, any info you have will be appreciated. I have been having a major flare since Feb. of this year. Pain got so bad finally broke down and had an injection. Here is it April and it has not really eased off. Haven't ever had it this bad. Like I said any info appreciated. Hope you are doing well.Suzanne</div> <div> posted in <a href="http://tribes.tribe.net/livinglupus">LIVING! With Lupus</a> - 3 replies </div>

Suzanne 2006-04-06T19:41:19Z